17th Workshop, Barcelona: “The Value of Orphan Drugs: Efficient for the Patients, Useful to Society?”
September 28th, 2012
In the current economic climate, the actual value of orphan drugs is misunderstood by society. The concept of value has different meanings for different stakeholders including clinical efficacy, economic value and improvements to the quality of life for patients. One strong recurrent message was the need for early dialogue between all parties involved, in order to improve access to treatment for patients, adaptive licensing being a potentially powerful way forward.
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