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November 2005

3rd Workshop, Barcelona: “Rare Disease Clinical Trials: Ensuring Fruitful Collaborations between Sponsors & Patient Organisations”

Barcelona, Spain

An advanced draft of the EURORDIS Charter for Clinical Trials in Rare Diseases was presented to the ERTC members who attended this workshop and a consultation phase was launched for all the ERTC members, which lasted a few months. They were asked to help EURORDIS to prepare the most useful and appropriate document to help sponsors to conduct their studies with direct collaboration and involvement of rare disease patients’ organisations.

Participants: 56

Key feature: first presentation of the draft EURORDIS Charter for rare disease clinical trials


For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.