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January 2021

Cheat Sheet: Meeting your MEP

This document has been created to help you prepare and deliver your message to an MEP during Rare Disease Week (22- 26 February 2021). 

Please feel free to adapt your message to address the specific needs in your country or disease area. 

This document includes:

  • Introducing yourself 
  • Things to remember going into the meeting 
  • Key message for your MEP: we need a new generation of policies for rare diseases 
  • Key ask for your MEP: join the Network of Parliamentary Advocates for Rare Diseases 
  • Customising your message 
  • The Rare 2030 recommendations