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May 2024

Rare Barometer : Diagnosis odyssey of people living with a rare disease survey communications toolkit


Use these resources, available in 27 languages, to share the new results Rare Barometer survey on the diagnosis odyssey of people living with a rare disease with your networks.

Click on the links below to download the materials.

1. Survey results hyperlink

Share this link to the survey results, which includes both dashboards and factsheets of the European results in 27 languages and a survey article.

2. Language-specific communications materials

Download and use the suggested posts, images and email template, translated into your language, to promote the survey results via your networks. You can also share our posts from @eurordis on Twitter, or the EURORDIS Facebook page via your social media accounts.

3. Survey overview

Read and learn more about the survey with our survey overview, available in English here.

4. Rare Barometer logos

Use the Rare Barometer logos alongside articles and other materials promoting the survey on your website.

Horizontal Rare Barometer Logo (white)

Vertical Rare Barometer Logo (white)

Horizontal Rare Barometer Logo (purple)

Vertical Rare Barometer Logo (purple)

5. Downloads

EnglishEmail Template
Suggested social media posts and images :
Twitter
Facebook
Instagram
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BulgarianОбразец за имейл до пациентски организации
Предложени публикации и изображения за социалните мрежи:
Twitter
Facebook
Instagram
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FrenchModèle d’e-mail
Publications et images suggérées pour les réseaux sociaux
Twitter
Facebook
Instagram
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PortugueseModelo de email para organizações de doentes
Sugestões de publicações e imagens para as redes sociais
Twitter
Facebook
Instagram
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CroatianPredložak e-pošte za organizacije pacijenata
Predložene objave i slike na društvenim mrežama (Croatian)
Twitter
Facebook
Instagram
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GermanE-Mail-Vorlage für Patientenorganisationen
Vorgeschlagene Beiträge und Bilder für die sozialen Medien :
Twitter
Facebook
Instagram
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RomanianȘablon de e-mail pentru organizații de pacienți
Postări și imagini sugerate pentru rețele sociale :
Twitter
Facebook
Instagram
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CzechŠablona e-mailu pro organizace pacientů
Navrhované příspěvky a obrázky na sociálních sítích (Czech)
Twitter
Facebook
Instagram
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GreekEmΠρότυπο email για τους οργανισμούς ασθενών
Προτεινόμενες δημοσιεύσεις και εικόνες για τα μέσα κοινωνικής δικτύωσης
Twitter
Facebook
Instagram
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DanishE-mailskabelon til patientorganisationer
Forslag til opslag og billeder på sociale medier
Twitter
Facebook
Instagram
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HungarianPredložak e-pošte za organizacije pacijenata
Javasolt közösségimédia-posztok és képek
Twitter
Facebook
Instagram
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SlovakEŠablóna e-mailu pre pacientske organizácie
Odporúčané príspevky na sociálne siete a obrázky
Twitter
Facebook
Instagram
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DutchEE-mailsjabloon voor patiëntenorganisaties
Aanbevolen posts en afbeeldingen voor social media
Twitter
Facebook
Instagram
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ItalianModello di email per le associazioni di pazienti
Contenuti consigliati per i social media con relative immagini
Twitter
Facebook
Instagram
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SlovenianEPredloga e-sporočila za organizacije bolnikov
Predlagane objave in slike v družbenih medijih
Twitter
Facebook
Instagram
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LatvianE-pasta veidne pacientu organizācijām
Ieteiktie ieraksti un attēli sociālajos tīklos
Twitter
Facebook
Instagram
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SpanishPlantilla de correo electrónico para organizaciones de pacientes
Sugerencias de mensajes e imágenes para las redes sociales
Twitter
Facebook
Instagram
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LithuanianPacientų organizacijoms skirto el. laiško šablonas (Lithuanian)
Siūlomi socialinės medijos pranešimai ir vaizdai
Twitter
Facebook
Instagram
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SwedishEE-postmall för patientorganisationer (Swedish)
Föreslagna inlägg och bilder för sociala media
Twitter
Facebook
Instagram
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FinnishSähköpostimalli potilasorganisaatioille (Finnish)
Ehdotukset sosiaalisen median postauksiin ja kuviin
Twitter
Facebook
Instagram
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PolishEmaSzablon e-maila do organizacji pacjentów (Polish)
Sugerowane posty i obrazy do użycia w mediach społecznościowych
Twitter
Facebook
Instagram
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RussianШаблон электронного письма для организаций пациентов (Russian)
Предлагаемые посты и изображения для социальных сетей
Twitter
Facebook
Instagram
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NorwegianE-postmal for pasientorganisasjoner
Forslag til innlegg og bilder til sosiale medier
Twitter
Facebook
Instagram
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UkrainianШаблон електронного листа для організацій пацієнтів
Запропоновані пости у соціальних мережах та зображення
Twitter
Facebook
Instagram
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TurkishHasta örgütleri için e-posta şablonu
Önerilen sosyal medya gönderileri ve görselleri
Twitter
Facebook
Instagram
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