Rare Barometer : Diagnosis odyssey of people living with a rare disease survey communications toolkit
Use these resources, available in 27 languages, to share the new results Rare Barometer survey on the diagnosis odyssey of people living with a rare disease with your networks.
Click on the links below to download the materials.
1. Survey results hyperlink
Share this link to the survey results, which includes both dashboards and factsheets of the European results in 27 languages and a survey article.
2. Language-specific communications materials
Download and use the suggested posts, images and email template, translated into your language, to promote the survey results via your networks. You can also share our posts from @eurordis on Twitter, or the EURORDIS Facebook page via your social media accounts.
3. Survey overview
Read and learn more about the survey with our press release here: eurordis.org/survey-reveals-lengthy-diagnostic-delays/
4. Rare Barometer logos
Use the Rare Barometer logos alongside articles and other materials promoting the survey on your website.
Horizontal Rare Barometer Logo (white)
Vertical Rare Barometer Logo (white)
Horizontal Rare Barometer Logo (purple)
Vertical Rare Barometer Logo (purple)
5. Downloads
| English | Email Template Suggested social media posts and images : – Text |
| Bulgarian | Образец за имейл до пациентски организации Предложени публикации и изображения за социалните мрежи: – Text |
| French | Modèle d’e-mail Publications et images suggérées pour les réseaux sociaux – Text |
| Portuguese | Modelo de email para organizações de doentes Sugestões de publicações e imagens para as redes sociais – Text |
| Croatian | Predložak e-pošte za organizacije pacijenata Predložene objave i slike na društvenim mrežama (Croatian) – Text |
| German | E-Mail-Vorlage für Patientenorganisationen Vorgeschlagene Beiträge und Bilder für die sozialen Medien : – Text |
| Romanian | Șablon de e-mail pentru organizații de pacienți Postări și imagini sugerate pentru rețele sociale : – Text |
| Czech | Šablona e-mailu pro organizace pacientů Navrhované příspěvky a obrázky na sociálních sítích (Czech) – Text |
| Greek | EmΠρότυπο email για τους οργανισμούς ασθενών Προτεινόμενες δημοσιεύσεις και εικόνες για τα μέσα κοινωνικής δικτύωσης – Text |
| Danish | E-mailskabelon til patientorganisationer Forslag til opslag og billeder på sociale medier – Text |
| Hungarian | Predložak e-pošte za organizacije pacijenata Javasolt közösségimédia-posztok és képek – Text |
| Slovak | EŠablóna e-mailu pre pacientske organizácie Odporúčané príspevky na sociálne siete a obrázky – Text |
| Dutch | EE-mailsjabloon voor patiëntenorganisaties Aanbevolen posts en afbeeldingen voor social media – Text |
| Italian | Modello di email per le associazioni di pazienti Contenuti consigliati per i social media con relative immagini – Text |
| Slovenian | EPredloga e-sporočila za organizacije bolnikov Predlagane objave in slike v družbenih medijih – Text |
| Latvian | E-pasta veidne pacientu organizācijām Ieteiktie ieraksti un attēli sociālajos tīklos – Text |
| Spanish | Plantilla de correo electrónico para organizaciones de pacientes Sugerencias de mensajes e imágenes para las redes sociales – Text |
| Lithuanian | Pacientų organizacijoms skirto el. laiško šablonas (Lithuanian) Siūlomi socialinės medijos pranešimai ir vaizdai – Text |
| Swedish | EE-postmall för patientorganisationer (Swedish) Föreslagna inlägg och bilder för sociala media – Text |
| Finnish | Sähköpostimalli potilasorganisaatioille (Finnish) Ehdotukset sosiaalisen median postauksiin ja kuviin – Text |
| Polish | EmaSzablon e-maila do organizacji pacjentów (Polish) Sugerowane posty i obrazy do użycia w mediach społecznościowych – Text |
| Russian | Шаблон электронного письма для организаций пациентов (Russian) Предлагаемые посты и изображения для социальных сетей – Text |
| Norwegian | E-postmal for pasientorganisasjoner Forslag til innlegg og bilder til sosiale medier – Text |
| Ukrainian | Шаблон електронного листа для організацій пацієнтів Запропоновані пости у соціальних мережах та зображення – Text |
| Turkish | Hasta örgütleri için e-posta şablonu Önerilen sosyal medya gönderileri ve görselleri – Text |