Skip to content
Generic filters
Exact matches only
Search in title
Search in content
Search in excerpt
January 2020

Share and protect our health data!


Rare disease patients’ preferences on data sharing and protection

A graphic report showing the results of the Rare Barometer survey on rare disease patients’ perspectives on data sharing and data protection, together with recommendations derived from the survey.

Read the full article

Graphic report available in 23 languages.

BulgarianСподеляме и защитаваме нашите данни за здравословното състояние!
CroatianPodijelite i zaštitite naše zdravstvene podatke!
CzechSdílejte a chraňte naše zdravotní údaje!
DanishDel og beskyt vores helbredsoplysninger!
DutchOnze gezondheidsgegevens delen en beschermen!
EnglishShare and protect our health data!
EstonianJagage ja kaitske meie terviseandmeid!
FinnishJaa – ja suojaa – terveystietojamme!
FrenchPartagez et protégez nos données de santé !
GermanPreisgabe und Schutz unserer Gesundheitsdaten!
GreekΚοινοποιείστε και προστατέψτε τα δεδομένα της υγείας σας!
HungarianOssza meg és védje egészségügyi adatainkat!
ItalianCondividere e proteggere i nostri dati sanitari!
LatvianIzmantojiet un aizsargājiet ar mūsu veselību saistītos datus!
LithuanianMūsų sveikatos duomenų bendrinimas ir apsauga!
PolishUdostępniaj i chroń nasze dane zdrowotne!
Portuguese Partilhar e proteger os nossos dados de saúde!
RomanianDezvăluirea și protejarea datele noastre privind sănătatea!
RussianПЕРЕДАЧА И ЗАЩИТА ДАННЫХ О ВАШЕМ ЗДОРОВЬЕ
SlovakZdieľajte a chráňte naše zdravotné údaje!
SlovenianPosredujte in zaščitite naše zdravstvene podatke!
Spanish¡Comparte y protege nuestros datos sanitarios!
SwedishDela och skydda vår hälsoinformation!