An insight into the participation of rare disease patients in research

November 2018

An insight into the participation of rare disease patients in research

Infographic presenting key results of the Rare Barometer survey on the participation of rare disease patients in research.

Over 3000 people living with a rare disease and their family members responded to the global Rare Barometer survey ‘Rare disease patients’ participation in research’.

Infographic available in 23 languages.

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English	Rare disease patients’ participation in research survey infographic
French	Rare disease patients’ participation in research survey infographic
Bulgarian	Rare disease patients’ participation in research survey infographic
Croatian	Rare disease patients’ participation in research survey infographic
Czech	Rare disease patients’ participation in research survey infographic
Danish	Rare disease patients’ participation in research survey infographic
Dutch	Rare disease patients’ participation in research survey infographic
Estonian	Rare disease patients’ participation in research survey infographic
Finnish	Rare disease patients’ participation in research survey infographic
German	Rare disease patients’ participation in research survey infographic
Greek	Rare disease patients’ participation in research survey infographic
Hungarian	Rare disease patients’ participation in research survey infographic
Italian	Rare disease patients’ participation in research survey infographic
Latvian	Rare disease patients’ participation in research survey infographic
Lithuanian	Rare disease patients’ participation in research survey infographic
Polish	Rare disease patients’ participation in research survey infographic
Portuguese	Rare disease patients’ participation in research survey infographic
Romanian	Rare disease patients’ participation in research survey infographic
Russian	Rare disease patients’ participation in research survey infographic
Slovak	Rare disease patients’ participation in research survey infographic
Slovenian	Rare disease patients’ participation in research survey infographic
Spanish	Rare disease patients’ participation in research survey infographic
Swedish	Rare disease patients’ participation in research survey infographic