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Communication toolkit for the new global Rare Barometer survey on Diagnosis!
Use these resources, available in 26 languages, to share the new global Rare Barometer survey with your networks!
The more people will take the survey, the stronger our voice will be!
Click on the links to download the materials.
1. Survey hyperlink
Share this link to the survey: tiny.cc/survey_diagRD
2. Rare Barometer survey overview
Learn more about the survey, who can respond and how the results will be used.
Rare Barometer survey on the Journey to Diagnosis for People Living with a Rare Disease
3. Language-specific communications materials
Download and use the suggested posts, images and email template, translated into your language, to promote the survey via your networks. You can also share our posts from @eurordis on Twitter, @eurordis on instagram or the EURORDIS Facebook page via your social media accounts.
Čeština
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Dansk
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Deutsch
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Eesti
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English
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Español
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Français
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Hrvatski
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Italiano
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Latviešu
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Lietùvių
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Magyar
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Melayu
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Nederlands
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Norsk
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Polski
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Português
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Română
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Slovenčina
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Slovenščina
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Suomi
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Svenska
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Ελληνικά
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български
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русский
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عربي
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4. Rare Barometer logos
Use the Rare Barometer logos alongside articles promoting the survey on your website.
Rare Barometer Logo (white)
Rare Barometer Logo (purple)
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative