Eurordis - Rare Disease Europe

Webinar: Together for Rare Diseases Initiative

5 June 2023 at 14.00-14.45

On 5 June, EURORDIS will hold a webinar to present and discuss the work of Together for Rare Diseases (Together4RD) initiatives around collaboration between European Reference Networks (ERNs) and industry.

Together4RD is a multi-stakeholder group that encompasses representatives of the patient community, decision-makers, ERNs and industry.

The objectives of this webinar are: 

1. To inform and engage the rare disease patient community about the progress being made in fostering effective and transparent partnerships between the ERNs and industry partners. 
2. Identify the different possible models and activities in which ERN-industry collaboration can be fruitful for all stakeholders. 
3. Identify patient community leaders who are interested in getting involved in the Together for Rare Diseases initiative

Patient involvement in the development of ERN and Industry collaboration is critical in providing transparency in how health data is collected and shared to support research activities in the EU. We look forward to listening to your views! 

Please register if you are interested in attending.