Eurordis - Rare Disease Europe

Results of the H-Care survey pilot

1. Key findings from the survey on patients’ and carers’ experience of medical care for their rare diseases.
2. Results of the survey regarding the development of a validated scale and of a Common Feedback Mechanism to measure healthcare experience for rare diseases in Europe.

Summary infographics on patients’ and carers’ experience of medical care for their rare diseases

Find a condensed version of the summary infographic in 23 languages below.