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February 2020

Improve our experience of health care!


  1. Key findings from the survey on patients’ and carers’ experience of medical care for their rare diseases.
  2. Results of the survey regarding the development of a validated scale and of a Common Feedback Mechanism to measure healthcare experience for rare diseases in Europe.

Summary infographics on patients’ and carers’ experience of medical care for their rare diseases

Find a condensed version of the summary infographic in 23 languages below.

EnglishKey findings from the H-Care survey
Setting standards of care quality!
BulgarianH-Care Survey condensed results
CroatianH-Care Survey condensed results
CzechH-Care Survey condensed results
DanishH-Care Survey condensed results
DutchH-Care Survey condensed results
FinnishH-Care Survey condensed results
FrenchH-Care Survey condensed results
GermanH-Care Survey condensed results
GreekH-Care Survey condensed results
HungarianH-Care Survey condensed results
ItalianH-Care Survey condensed results
LatvianH-Care Survey condensed results
LithuanianH-Care Survey condensed results
NorwegianH-Care Survey condensed results
PolishH-Care Survey condensed results
Portuguese H-Care Survey condensed results
RomanianH-Care Survey condensed results
RussianH-Care Survey condensed results
SlovakH-Care Survey condensed results
SlovenianH-Care Survey condensed results
SpanishH-Care Survey condensed results
SwedishH-Care Survey condensed results