RareConnectA social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups.

RareConnect Story of the Week

RareConnect Story of the Week

Living with Choroideremia (CHM) in Finland

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Job Openings

Communications Junior Manager

EURORDIS is currently hiring for the position of Communications Junior Manager.
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The voice of rare disease patients in EuropeEURORDIS Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases