The International Rare Disease Research Consortium (IRDiRC)
Integrating national funding for rare disease research within common international goals and policies
Belgium’s National Plan for Rare Diseases
Belgium examines 42 recommendations for the establishment of a National Plan for Rare Diseases based on patient-centred care
Rett Syndrome: Happiness, a mother’s greatest gift
Instead of focusing on the negative aspects of their daughters’ Rett Syndrome, two women draw strength from the positive.
ECRD 2012 Brussels
Save the date! The 6th European Conference on Rare Diseases and Orphan Products will be held on 23 – 25 May 2012 in Brussels.
EMM 2012 Brussels
The next EURORDIS Membership Meeting (EMM) takes place May 23 in Brussels in conjunction with ECRD 2012.
EUROPLAN - Guidance for National Plans and Conferences
Now available: the reports from the EUROPLAN National Conferences.
Rare Disease Day
29 February 2012,
the 5th Rare Disease Day,
embraces the theme "Solidarity"
Find out more...
