Anders Olauson, Eurordis Board member and President of the European Patients' Forum was awarded The King's Medal for his distinguished commitment in the field of patients rights.
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Save the date in your diary!
5th European Conference on Rare Diseases (ECRD), Krakow, Poland, 13- 15 May 2010
"From Policies to Effective Services for Patients".
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On the 13th of May 2010, EURORDIS will hold its General Assembly and its 10th Council of National Alliances in Krakow, Poland. Read more...
Many rare diseases carry risk factors with regard to flu. Read more...
The European Network of Rare Disease Help Lines
EURORDIS is inviting all Rare Disease help lines in Europe to apply to join the European Network of Rare Disease Help Lines.
Help for today and hope for tomorrow
The motto of the Jennifer Trust for Spinal Muscular Atrophy in the UK is help for today and hope for tomorrow
EURORDIS ECRD Patient Group Representative Fellowship Program
Eurordis offers fellowships for 50 patient representatives to attend the 5th European Conference on Rare Diseases in Krakow, Poland May on 13-15, 2010.
Battling paediatric cancers
SIOPE is a European organisation promoting optimal standards of care for children and young people with cancer.
Rare Disease Day 2010: Coming up!
This year the rare disease community will drum up around the motto “Patients & Researchers: Partners for Life”.
Member profile: Alliance Sanfilippo
'My husband and I had never heard of Sanfilippo syndrome before the doctors told us in July 2005 that our dear and beautiful Ornella was suffering from the disease.'
2010 Photo & Video Contest
The Eurordis 2010 Photo & Video Contest is now officially open. Open to anyone having an interest in rare diseases, whether members of EURORDIS or not.
