- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Promoting orphan drug development
- Orphan drug designation
- Improve the safety of your medicines
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- Latest orphan designations and/or marketing authorisations
- EURORDIS Round Table of Companies (ERTC)
- Living with a Rare Disease
- Services to Patients
- Training Resources
- News & Events
Respite Care Services: allowing caregivers a chance to take a break!
Read about living with a rare disease and the services available
European Myasthenia Gravis Association (EUGMA) Annual Meeting, 30 May 2013, Dubrovnik, Croatia
Check out the latest news and events from our members.
EUROPLAN Romanian Conference: 24-25 May in Bucharest, under the auspices of the Romanian Health Ministry.
Read more about EUROPLAN 2012-2015
EURORDIS Statement on Data Protection proposals
Data Protection proposals would obstruct rare disease research.
4th International Symposium on Disorders of Sex Development (DSD) 7-9 June, Glasgow, Scotland
Check out the latest international rare disease events
RareConnect
A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups.
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I may struggle from narcolepsy, but I refuse to let it take over my life |
List of Rare Disease Communities:
To find out more about how you can join RareConnect, contact us.
Patients and services
Featured Event
Members' Corner
National Plans
Actions
International Events
EURORDIS TV
Watch EURORDIS TV's video of the week!
Hungry: Living with Prader-Willi Syndrome
A father and son talk about living with Prader-Willi Syndrome, a disorder characterised by insatiable hunger as well as behavioural issues
Social Networks
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