RareConnect

RareConnect

A social network of rare disease communities led by EURORDIS in partnership with leading disease-specific patient groups.

RareConnect Story of the Week

RareConnect Story of the Week

Living with congenital generalised lipodystrophy in Chile

To find out more about how you can join RareConnect, contact us.




 

 

 

 

Job Openings

 

EURORDIS is currently hiring for the following position:

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases