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Brussels Rare Disease Week

Brussels Rare Disease Week is a week-long series of events organised by EURORDIS in the lead-up to Rare Disease Day in Brussels, including a series of preparatory webinars. It targets rare disease patient advocates with a view to empower them with knowledge and skills to effectively participate in advocacy activities at the European level and influence the EU decisions that have a direct impact on the lives of people living with a rare disease.

It aims to raise awareness of rare diseases and present a strong and united message to Members of the European Parliament (MEPs) and other policy-makers in Brussels on behalf of the rare disease community. Through a number of activities and events, including training sessions, meetings with policy makers and networking events, RDW participants will be able to put their knowledge into practice and raise awareness of their rare diseases.

For any additional information, please contact:

Julie Pernet,
EU Public Affairs Senior Manager