About EURORDIS

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 634 rare disease patient organisations in 58 countries.
We are the voice of 30 million people affected by rare diseases throughout Europe.

 

Who we are

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond

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What we do

EURORDIS' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level.

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Membership

Through our membership we federate over 600 patient organisations representing over 4000 rare diseases in more than 50 countries.

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Library

Read our position papers, contributions, fact sheets and other publications.

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Contact us

Find out how to contact our Board and our Staff and how to locate our offices.

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Our funding

EURORDIS' expenses and revenues and who supports us financially.

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Donate

By making a donation, you will help empower the European rare disease community and advocate for rare disease patients at national and European levels.

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