About EURORDIS

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 646 rare disease patient organisations in 60 countries.
We are the voice of 30 million people affected by rare diseases throughout Europe.

 

Who we are

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond

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What we do

EURORDIS' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level.

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Membership

Through our membership we federate over 600 patient organisations representing over 4000 rare diseases in more than 50 countries.

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Library

Read our position papers, contributions, fact sheets and other publications.

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Contact us

Find out how to contact our Board and our Staff and how to locate our offices.

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Our funding

EURORDIS' expenses and revenues and who supports us financially.

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Donate

By making a donation, you will help empower the European rare disease community and advocate for rare disease patients at national and European levels.

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The voice of rare disease patients in EuropeEURORDIS Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases