Members’ news and announcements
Find out what's on and where! See which members are in the news!
Rare disease events in Europe
Find out which rare disease events are taking place in your country.
Rare Disease Blogs
Learn more about rare diseases and orphan drugs through opinions given by key players in these sectors. Join in and leave your comment too!
ECRD 2012 Brussels
Save the date! The 6th European Conference on Rare Diseases and Orphan Products will be held on 23 – 25 May 2012 in Brussels.
"Rare but strong together"
29 February 2012, the 5th Rare Disease Day, embraces the theme "Solidarity". Join forces to put the spotlight on rare diseases and the millions affected by them.
Conference Report - ECRD Krakow 2010
The ECRD in Krakow built momentum to turn EU policy framework into effective services for rare disease patients in Europe. Read the full report...
Stem cell treatment for eye diseases shows promise
On 24 January 2012, the medical journal The Lancet published online results of successful cell therapy based on cultivated embryonic stem cells in the retina. This...
EMA opinion gives hope
EMA opinion gives hope for treatment of Prader-Willi syndrome In January 2012, the Committee for Orphan Medicinal Products (COMP) recommended the...
Belgium’s National Plan for Rare Diseases
Belgium examines 42 recommendations for the establishment of a National Plan for Rare Diseases based on patient-centred care
The International Rare Disease Research Consortium (IRDiRC)
Integrating national funding for rare disease research within common international goals and policies
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