- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Promoting orphan drug development
- Orphan drug designation
- Improve the safety of your medicines
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- Latest orphan designations and/or marketing authorisations
- EURORDIS Round Table of Companies (ERTC)
- Living with a Rare Disease
- Services to Patients
- Training Resources
- News & Events
Contact us
Paris OfficeEURORDIS Plateforme Maladies Rares 96, rue Didot 75014 Paris France |
 |
|
Tel: +33 (1) 56.53.52.10 Fax: +33 (1) 56.53.52.15 eurordis@eurordis.org |
|
Brussels OfficeEURORDIS Avenue Louise 149/24 1050 Brussels Belgium |
|
|
Tel: + 32 2 535 75 26 |
|
|
|
|
Visiting the EURORDIS Offices in ParisBus lines: PC1, 58, 62 Metro Station: Plaisance or Porte de Vanves Tramway Station: Didot (T3 line) The EURORDIS offices are located at the entrance of the former hospital compound of the Hôpital Broussais. The hospital has 2 entrances. The main gate at 96, rue Didot may be closed in which case use the secondary entrance at 96 bis rue Didot. The offices are located in "Bâtiment Maurice Raynaud" "Secteur Bleu" - Entrance 8 on the 1st floor Download plan 
|
|
|
View map: View Larger Map |
|
|
|
|
Questions?Membership Anja Helm, Manager of Relations with Patient Organisations anja.helm@eurordis.org Information and help |
|
ContactStaff Board of Directors Rare Disease Member Organisations Still have questions? Contact us eurordis@eurordis.org |
|
LanguagesThe official language at EURORDIS is English. EURORDIS staff can also communicate in French, German, Italian, Spanish and Portuguese. For questions in other languages, please contact a National Alliance representing a country in which your language is spoken. |
|
RareConnect
A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups. List of Rare Disease Communities:
- Alkaptonuria (AKU)
- Alström Syndrome
- Alternating Hemiplegia
- Atypical Hemolytic Uremic Syndrome
- Amyloidosis
- Behçet's Syndrome
- CAPS
- CDG
- Coats disease
- Cryoglobulinemia
- Cystinosis
- Dravet Syndrome
- DysNet, Dysmelia - Limb Differences
- Ehlers-Danlos Syndrome
- Epidermolysis Bullosa
- Erdheim-Chester Disease
- Evans Syndrome
- Familial Mediterranean Fever
- Fibromuscular dysplasia
- Glut1 DS
- Hereditary Leiomyomatosis and Renal Cell Cancer
- Hereditary Spastic Paraplegia
- Idiopathic Pulmonary Fibrosis
- Lipoprotein Lipase Deficiency
- Lowe Syndrome
- Mastocytosis and Mast Cell Activation Disorders community
- Multiple Myeloma
- Multiple system atrophy
- Moebius Syndrome
- Narcolepsy
- Neuroacanthocytosis
- Paraneoplastic Neurological Syndromes
- Porphyria
- Propionic Acidemia
- Pulmonary Hypertension
- Rett Syndrome
- Trimethylaminuria
- Von Hippel-Lindau
- Waldenstrom macroglobulinemia
- Whim syndrome
- Alkaptonuria (AKU)
- Alström Syndrome
- Alternating Hemiplegia
- Atypical Hemolytic Uremic Syndrome
- Amyloidosis
- Behçet's Syndrome
- CAPS
- CDG
- Coats disease
- Cryoglobulinemia
- Cystinosis
- Dravet Syndrome
- DysNet, Dysmelia - Limb Differences
- Ehlers-Danlos Syndrome
- Epidermolysis Bullosa
- Erdheim-Chester Disease
- Evans Syndrome
- Familial Mediterranean Fever
- Fibromuscular dysplasia
- Glut1 DS
- Hereditary Leiomyomatosis and Renal Cell Cancer
- Hereditary Spastic Paraplegia
- Idiopathic Pulmonary Fibrosis
- Lipoprotein Lipase Deficiency
- Lowe Syndrome
- Mastocytosis and Mast Cell Activation Disorders community
- Multiple Myeloma
- Multiple system atrophy
- Moebius Syndrome
- Narcolepsy
- Neuroacanthocytosis
- Paraneoplastic Neurological Syndromes
- Porphyria
- Propionic Acidemia
- Pulmonary Hypertension
- Rett Syndrome
- Trimethylaminuria
- Von Hippel-Lindau
- Waldenstrom macroglobulinemia
- Whim syndrome
We comply with the HONcode standard for health trustworthy information
We are grateful for the financial support of the EURORDIS website by :
