The Council of National Alliances (CNA)

The CNA was established by Eurordis. This structure allows national representatives of rare diseases to work together on common European actions.

Council of National Alliances
 
It is a primary source of information and provides a platform for communication and support between Eurordis and the alliances for rare disease policies at European level.
 
Current collaboration includes:

  • Centres of expertise
  • European Rare Disease Day (last day of February every year)
  • Patient surveys on access to care
  • Training sessions for rare disease patients
  • National Action Plans for rare diseases

 
To become a member of the CNA, the national alliance has to be a full member of Eurordis.