e-Learning

Learn about Clinical Trials at your own pace with a new e-learning course developed by EURORDIS

http://www.eurordis.org/training-resources#tabs-2
 

European action in the field of rare diseases

"Expertise on rare diseases is fragmented across the EU. Even the very existence of some of these diseases is not fully recognised.

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EC Communication and Council Recommendation on Rare Diseases

The Commission Communication and Council Recommendation establish a strategy for meeting the challenge of rare diseases.

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Recent EU proposal renews hope

Organ donation and transplantation (ODT) is back on the European political agenda.

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A public health priority

Promoting rare diseases as a public health priority is one of the most important stated objectives to EURORDIS.

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Why rare disease research matters

Advocating for increased and more targeted funding for research into rare diseases

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ECRD 2010 Krakow: Momentum for rare diseases

An unprecedented number of participants attended the largest ever European Conference on Rare Diseases (ECRD), held in Krakow, Poland on May 14 & 15, 2010.

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The voice of rare disease patients in EuropeEURORDIS Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases