e-Learning

Learn about Clinical Trials at your own pace with a new e-learning course developed by EURORDIS

http://www.eurordis.org/training-resources#tabs-2
 

European action in the field of rare diseases

"Expertise on rare diseases is fragmented across the EU. Even the very existence of some of these diseases is not fully recognised.

read more...
 

EU Rare Disease Policies: An Overview

More than half of Member State legislation stem from EU policies and strategies, including directives, regulations and recommendations. 

read more...
 

EC Communication and Council Recommendation on Rare Diseases

The Commission Communication and Council Recommendation establish a strategy for meeting the challenge of rare diseases.

read more...
 

Recent EU proposal renews hope

Organ donation and transplantation (ODT) is back on the European political agenda.

read more...
 

A public health priority

Promoting rare diseases as a public health priority is one of the most important stated objectives to EURORDIS.

read more...
 

Why rare disease research matters

Advocating for increased and more targeted funding for research into rare diseases

read more...
 

ECRD 2010 Krakow: Momentum for rare diseases

An unprecedented number of participants attended the largest ever European Conference on Rare Diseases (ECRD), held in Krakow, Poland on May 14 & 15, 2010.

read more...