EUROPLAN - Details of National Conferences

A key milestone of the EUROPLAN project is the holding of National Conferences in the participant Member States between May and December 2010. Indeed work package 8 of the project consists in the organisation of 15 national conferences by EURORDIS and national alliances on the transposition of the European policy framework and common recommendations into national strategies and plans.

This map displays confirmed EUROPLAN Rare Disease National Conference venues

Please click on any of the yellow icons for more details (dates etc.) Please note that the exact addresses of the conferences are not yet available

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Conference Details

Bulgarian Conference

Where: Plovdiv (Congress Centre at Novotel-Plovdiv)
When: 28-29-30 May 2010
Organiser: NAPRD National Alliance of People with Rare Disease
Website: http://conf2010.raredis.org/

Romanian Conference

Where: Bucarest
When: 18-19 June 2010
Organiser: RONARD Romanian National Alliance for Rare Diseases
Website: http://anbraro.wordpress.com

Croatian Conference

Where: Dubrovnik
When: 18-19-20 September 2010
Organiser: Hrvatska udruga bolesnikas rijetkim bolestima
Website: www.rijetke-bolesti.hr

French Conference

Where: Paris
When: 30 September 2010
Organiser: Alliance Maladies Rares
Website: www.alliance-maladies-rares.org

German Conference

Where: Berlin
When: 13-14 October 2010
Organiser: ACHSE Allianz Chronischer Seltener Erkrankungen
Website: www.achse-online.de

Hungarian Conference

Where: Budapest
When: 18-19 October 2010
Organiser: HUFERDIS Rare Disease Hungary
Website: www.rirosz.hu

Poland Conference

Where: Krakow
When: 22 October
Organiser: Polish Cystic Fibrosis Foundation MATIO
Website: www.mukowiscydoza.pl

Spanish Conference

Where: Burgos
When: 5-6 November 2010
Organiser: FEDER Federación Española de Enfermedades Raras
Website: www.enfermedades-raras.org

Swedish Conference

Where: Stockholm
When: 11 November 2010
Organiser: Sällsynta diagnoser
Website: www.sallsyntadiagnoser.se

Italian Conference

Where: Florence
When: 11-12-13 November 2010
Organiser: UNIAMO Federazione Italiana Malattie Rare
Website: www.uniamo.org

UK Conference

Where: Manchester
When: 16 November 2010
Organiser:  Genetic Interest Group - Rare Disease UK
Website:www.raredisease.org.uk

Danish Conference

Where: Copenhagen
When: 19 November 2010
Organiser: Rare Disorders Denmark
Website: www.sjaeldnediagnoser.dk

Dutch Conference

Where: The Hague
When: 19 November 2010
Organiser: VSOP Dutch Genetic Alliance
Website: www.vsop.nl

Greek Conference

Where: Athens
When: 26-27 November 2010
Organiser: PESPA Greek Alliance for Rare Diseases
Website: www.pespa.gr

Irish Conference

Where: Dublin
When: 3 December 2010
Organiser: GRDO Genetic and Rare Disorders Organisation  and Fighting Blindness
Website: www.europlan.ie

Author: EURORDIS