Our mission

The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.

Eurordis' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.

  student | étudiant | estudiante | allievo | estudante | Kursteilnehmer | Cells affected by a rare disease | cellules| células | cellule | pilhas | Zellen

To this end, Eurordis undertakes activities on behalf of its members, notably in favour of:
 

  • Empowering rare disease patient groups
  • Advocating rare diseases as a public health issue
  • Raising public rare disease awareness, and also that of national and international institutions
  • Improving access to information, treatment, care, and support for people living with rare diseases
  • Encouraging good practices in relation to these
  • Promoting scientific and clinical rare disease research
  • Developing rare disease treatments and orphan drugs
  • Improving quality of life through patient support, social, welfare and educational services

Author: Eurordis
Photos: pills © www.freeimages.co.uk ; Cells affected by multiple myeloma (Mott cell) © University of Virginia Health System ; student © United Kingdom Literacy Association