International rare disease events



September 2016

ERS International Congress 2016

3-7 September, London, United Kingdom,

MAC–CRUK–SIOPE Conference ‘Review of the EU Paediatric Medicines Regulation – Let’s do more for children with cancer’

7 September, European Parliament, Brussels, Belgium, Save the date

27th European Dysmorphology Meeting

8 -9 September, Le Bischenberg, France,

European Association of Centres of Medical Ethics Conference: "30 years of European Bioethics"

8-10 September, Leuven, Belgium,

The XLH Symposium 2016

9 September, Paris, France,

2nd International Conference on New Concepts in B-Cell Malignancies

9-11 September, Estoril, Portugal,

55th ESPE Annual Meeting

10-11 September, Paris, France,

9th ISNS International meeting/10th ISNS European Regional meeting

11-14 September, The Hague, the Netherlands,

4th Annual International ECD (Erdheim-Chester Disease) Symposium and Patient & Family Gathering 

14-16 September, Paris, France,

NIHR Rare Diseases Translational Research Collaboration Research Symposium
15 September, Cambridge, UK,

4th International Conference on Oesophageal Atresia

15-16 September, Sydney, Australia,

17th Physiatric Summer School Rare Musculoskeletal Diseases - on the Edge

15 - 16 September, Helsinki, Finland,

The 50th anniversary of the first publication on Rett Syndrome

15-17 September, Vienna, Austria,

European Huntington’s Disease Network Plenary Meeting 2016

16 – 18 September, The Hague, Netherlands,

2016 Australasia-Pacific Post-Polio Conference

20-22 September, Sydney, Australia,

Rare Metabolic Disorders: Detection, Research, Management and Treatment

20-22 September, London, United Kingdom,

European Paediatric Stroke Symposium 2016

21-22 September, Lyon, France,

5th World Congress of Clinical Safety

21-23 September, Massachusetts,

EUCelLEX Final International Conference “Engaging stakeholders for responsible Stem Cells research”

22-23 September 2016, Paris, France,

DEBRA (Epidermolysis Bullosa) International Congress 2016

22-25 September, Zagreb, Croatia,

ESID European Society for Immunodeficiencies: 17th Biennial meeting
21-24 September, Barcelona, Spain,

5th Annual Angelman International Scientific Conference-Lisbon 2016

30 September – 1 October, Lisbon, Portugal,


October 2016

Cilia 2016: 'from fundamental biology to human disease'

4-7 October, Amsterdam, Netherlands,

Alstrom Syndrome Europe (AS EU) - 4th European Conference 

10 October, Vigo, Spain
Contact AS EU managing Director,

DIA/EFGCP/EMA Better Medicines for Children Conference: “Optimisation of Drug Development for the Benefit of Children”

10 - 11 October, European Medicines Agency, London, UK, registration form

RareX 2016 & 11th ICORD Annual Meeting (International Conference on Rare Diseases & Oprhan Drugs)

19-22 October, Cape Town, South Africa,

2nd Cambridge Rare Disease Summit

25 October, Cambridge, UK,

27th International Conference on Spina Bifida and Hydrocephalus

28-30 October, Ghent, Belgium

The National Hereditary Hemorrhagic Telangiectasia Patient & Family Conference

28-30 October, Boston, United States,

November 2016

International Tuberous Sclerosis Research Conference

3-5 November, Lisbon, Portugal,

2016 TSC (Tuberous Sclerosis Complex) International Family meeting

6 November, Lisbon, Portugal,

World Orphan Drug Conference
15-17 November, Brussels, Belgium,

RARE-Bestpractices conference
24 November, Rome, Italy,

February 2017

3rd International Rare Diseases Research Consortium Conference

8 - 9 February, Paris, France,

2017 edition of the ACCELERATE Paediatric Conference (formerly known as CDDF-ITCC-SIOPE Paediatric Conference)

22-23 February, Brussels, Belgium,

7th International Meeting on Pulmonary Rare Disease and Orphan Drugs

24-25 February, Milan, Italy,

March 2017

Keystone Symposia – Rare and Undiagnosed Diseases: Discovery and Models of Precision Therapy

5-8 March, Boston, USA


June 2017

8th International Conference on Children’s Bone Health (ICCBH)

10-13 June, Würzburg, Germany,


August 2017

OlOslo2017- 13th International Conference on Ostegenesis Imperfecta

27-30 August, Oslo, Norway,


November 2017

Third edition of the International Primary Immunodeficiencies Congress - IPIC2017 - 

8-10 November, Dubai



Page created: 03/12/2009
Page last updated: 28/09/2016
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