International rare disease events

 

April 2016

13th International Congress of Human Genetics (ICHG) 2016

3-7 April, Kyoto, Japan  www.ichg2016.org

28th Annual DIA EuroMeeting

6-8 April, Hamburg, Germany, www2.diaglobal.org

9th International Conference of the European Chromosome 11 Network

8-10 April, Pforzheim, Germany, chromosome11.org

5th International Conference on Myelodysplastic Syndromes

14-16 April, Estoril, Portugal, www.esh.org


 

May 2016


International Symposium on Ehlers Danlos Syndrome

3-6 May, New York City, USA, www.eds2016.org

Mitochondrial Medicine: Developing New Treatments for Mitochondrial Disease

4-6 May, Cambirdge, UK, registration.hinxton.wellcome.ac.uk

Myotubular Trust European Family Conference and Workshop 2016

6 May, Niedernhausen, Germany, www.myotubulartrust.com
 

Hereditary Angioedema (HAE) Global Conference 

19-22 May, Madrid, Spain, haei.org

H2020 European Health/Rare Diseases Brokerage Event

12-13 May, Oslo, Norway, https://www.b2match.eu
 

8th Alstrom Syndrome International Conference

12-16 May, Plymouth, Massachusetts USA, www.alstrom.org

2016 World Congress on Rett Syndrome

13-17 May, Kazan, Russia, www.rettsyndrome.eu

ECRIN's meeting on International Clinical Trials Day

20 May, Prague, Czech Republic, www.ecrin.org

European Conference PanCareSurFup for Childhood Cancer Survivors ‘Acting Now!

23-24 May, Brussels, Belgium, www.pancaresurfup.eu

IPFA/PEI 23rd International Workshop on "Surveillance and Screening of Blood Borne Pathogens"

25 - 26 May, Lisbon, Portugal, www.ipfa.nl

ECRD 2016: The European Conference on Rare Diseases & Orphan Products 
26-28 May, Edinburgh, United Kingdom, www.rare-diseases.eu


 

June 2016

8th International WASOG Conference 2016 on Diffuse Parenchymal Lunger Diseases

2-4 June, Gdansk, Poland, www.wasog2016.viamedica.pl

ExPRESS 2016 Expert Patient and Researcher EURORDIS Summer School

Barcelona, 6-10 June 2016. More info

39th European Cystic Fibrosis Conference

8-11 June, Basel, Switzerland, www.ecfs.eu

21st International Waldenstroms Macroglobulemia Foundation Ed Forum

10-12 June, Rhode Island, United States www.iwmf.com/

14th National Conference on Hydrocephalus

16-19 June, Minneapolis, USA , www.hydrocephalusconference.org

International Meeting on Spastic Paraparesis and Ataxias

23-25 June, Paris, France, spatax.wordpress.com

FEPS (Federation of European Physiological Societies) 2016

29 June – 1st July, Paris, France, www.feps.org

12th European Working Group on Gaucher Disease 2016 meeting

29 June-2 July, Zaragoza, Spain www.ewggd2016zaragoza.com/

9th International Cycstinosis Congress Beyond Borders

30 June- 3 July, Valencia, Spain, www.agoralive.com


 

July 2016

19th Retina International World Congress in Taipei, Taiwan

13-14 July, Taipei, Taiwan, retina-international.org

14th Symposium on MPS (mucopolysaccharidosis) and related diseases 
14-17 July, Bonn, Germany, www.mps2016.com

RYR-1 (Ryanodine-1 myopathy) International Family Conference 2016

22-24 July, Baltimore, USA, www.RYR1.org

World Federation of Hemphilia- 2016 World Congress

24-28 July, Orlando, USA, www.wfh.org


August 2016 

3rd European Aniridia Conference OlOslo2017- 13th International Conference on Ostegenesis Imperfecta

27-28 August, Duisberg, Germany www.aniridiaconference.eul

OlOslo2017- 13th International Conference on Ostegenesis Imperfecta
27-30 August, Oslo, Norway, www.oioslo2017.org

 

76th FIP World Congress of Pharmacy and Pharmaceutical Sciences 2016: “Rising to the challenge: reducing the global burden of disease”

28 August – 1 September, Buenos Aires, Argentina, buenosaires2016.fip.org/


 

September 2016

ERS International Congress 2016

3-7 September, London, United Kingdom, erscongress.org

27th European Dysmorphology Meeting

8 -9 September, Le Bischenberg, France, http://eurodysmorpho.org/

European Association of Centres of Medical Ethics Conference: "30 years of European Bioethics"

8-10 September, Leuven, Belgium, kuleuvencongres.be

2nd International Conference on New Concepts in B-Cell Malignancies

9-11 September, Estoril, Portugal, www.esh.org

55th ESPE Annual Meeting

10-11 September, Paris, France, www.espe2016.org

9th ISNS International meeting/10th ISNS European Regional meeting

11-14 September, The Hague, the Netherlands, www.isns2016.com

4th Annual International ECD (Erdheim-Chester Disease) Symposium and Patient & Family Gathering 

14-16 September, Paris, France, events.r20.constantcontact.com

NIHR Rare Diseases Translational Research Collaboration Research Symposium
15 September, Cambridge, UK, rd.trc.nihr.ac.uk

4th International Conference on Oesophageal Atresia

15-16 September, Sydney, Australia, www.oa2016.com.au

17th Physiatric Summer School Rare Musculoskeletal Diseases - on the Edge

15 - 16 September, Helsinki, Finland, www.orton.fi
 

2016 Australasia-Pacific Post-Polio Conference

20-22 September, Sydney, Australia, www.cvent.com

Rare Metabolic Disorders: Detection, Research, Management and Treatment

20-22 September, London, United Kingdom, lifescienceevents.com

European Paediatric Stroke Symposium 2016

21-22 September, Lyon, France, www.chu-st-etienne.fr

5th World Congress of Clinical Safety

21-23 September, Massachusetts, www.iarmm.org

ESID European Society for Immunodeficiencies: 17th Biennial meeting
21-24 September, Barcelona, Spain, esid.org


 

October 2016

Cilia 2016: 'from fundamental biology to human disease'

4-7 October, Amsterdam, Netherlands, events.embo.org

Alstrom Syndrome Europe (AS EU) - 4th European Conference 

10 October, Vigo, Spain
Contact AS EU managing Director, kay.parkinson@alstromsyndrome.eu

ICORD 2016 (International Conference on Rare Diseases & Oprhan Drugs)

This conference will be the first joint collaboration between ICORD and Rare Diseases International (EURORDIS)

19-22 October, Cape Town, South Africa, rarex.co.za

2nd Cambridge Rare Disease Summit

25 October, Cambridge, UK, www.camraredisease.org/

27th International Conference on Spina Bifida and Hydrocephalus

28-30 October, Ghent, Belgium www.turningpoints2016.org/

November 2016

World Orphan Drug Conference 

15-17 November, Brussels, Belgium, www.terrapinn.com


November 2017

Third edition of the International Primary Immunodeficiencies Congress - IPIC2017 - 

8-10 November, Dubai www.ipic2017.com/

 

 

Page created: 03/12/2009
Page last updated: 20/05/2016
 
 
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