International rare disease events


October 2016

Cilia 2016: 'from fundamental biology to human disease'

4-7 October, Amsterdam, Netherlands,

Alstrom Syndrome Europe (AS EU) - 4th European Conference 

10 October, Vigo, Spain
Contact AS EU managing Director,

DIA/EFGCP/EMA Better Medicines for Children Conference: “Optimisation of Drug Development for the Benefit of Children”

10 - 11 October, European Medicines Agency, London, UK, registration form

RareX 2016 & 11th ICORD Annual Meeting (International Conference on Rare Diseases & Oprhan Drugs)

19-22 October, Cape Town, South Africa,

2nd Cambridge Rare Disease Summit

25 October, Cambridge, UK,

27th International Conference on Spina Bifida and Hydrocephalus

28-30 October, Ghent, Belgium

The National Hereditary Hemorrhagic Telangiectasia Patient & Family Conference

28-30 October, Boston, United States,

November 2016

International Tuberous Sclerosis Research Conference

3-5 November, Lisbon, Portugal,

2016 TSC (Tuberous Sclerosis Complex) International Family meeting

6 November, Lisbon, Portugal,

World Orphan Drug Conference
15-17 November, Brussels, Belgium,

RARE-Bestpractices conference
24 November, Rome, Italy,

February 2017

3rd International Rare Diseases Research Consortium Conference

8 - 9 February, Paris, France,

2017 edition of the ACCELERATE Paediatric Conference (formerly known as CDDF-ITCC-SIOPE Paediatric Conference)

22-23 February, Brussels, Belgium,

7th International Meeting on Pulmonary Rare Disease and Orphan Drugs

24-25 February, Milan, Italy,

March 2017

Keystone Symposia – Rare and Undiagnosed Diseases: Discovery and Models of Precision Therapy

5-8 March, Boston, USA

May 2017

WFH 15th International Musculoskeletal Congress
5-7 May, Seoul, Republic of Korea

June 2017

8th International Conference on Children’s Bone Health (ICCBH)

10-13 June, Würzburg, Germany,


August 2017

OlOslo2017- 13th International Conference on Ostegenesis Imperfecta

27-30 August, Oslo, Norway,


November 2017

Third edition of the International Primary Immunodeficiencies Congress - IPIC2017 - 

8-10 November, Dubai



Page created: 03/12/2009
Page last updated: 14/10/2016
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases