Rare Diseases awareness dates

Does your association have an awareness date to communicate? Please contact us.

June 2016

Heart Rhythm Week

6-12 June 2016, more information

Chromosome Disorder Awareness Week

12-18 June 2016, more information

World Sickle Cell Week

12-19 June 2016, more information

Myeloma Awareness Week

21-28 June 2016, more information

Dravet Syndrome Awareness Day
23 June 2016, more information

World Scleroderma Day

29 June 2016, more information

July 2016

Pseudohypoparathyroidism Awareness Day

5 July 2016, more information

August 2016

World PVNH disorder Awareness day

7 August 2016, more information

September 2016

World Duchenne Awareness Day

7 September, more information

World Cystic Fibrosis Day

8 September, more information

Erdheim-Chester Disease Awareness Week

12-17 September, more information

World Lymphoma Awareness Day

15 September, more information

Usher Awareness Day - Own the Equinox

17 September, more information

IPF World Week

17-25 September 2016, www.ipfworld.org

Global Aortic Dissection Awareness Day

19 September, more information

International CML Awareness Day

22 September, more information

World Retina Day

24 September, more information

International Ataxia Awareness Day

25 September 2016, More information

SMA (Spinal Muscular Atrophy) Awareness Week 

Date TBC, more information

October 2016

International Gaucher Day

1 October, more information

International Trigeminal Neuralgia Awareness Day

7 October, more information

World Spina Bifida Day

25 October, more information

EB Awareness Week

25-31 October 2016, More information

November 2016

NET Cancer Day

10 November, more information

Cystic Fibrosis Awareness week

21 November, more information

AF Aware Week

21-27 November, more information

December 2016

International Day of Persons with Disabilities

3 December, more information

Patient Solidarity Day

5 December, more information

Februrary 2017

International Angelmans Day

15 February, more information

March 2017

International Childhood Cancer Awareness Day (ICCD 2017)

7 March, more information

Page created: 08/11/2013
Page last updated: 15/02/2017
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