Rare Diseases awareness dates

Does your association have an awareness date to communicate? Please contact us.

March 2016

Together under the umbrella for Brain Disorders 

European Federation of Neurological Associations , more information

World Birth Defect Day

3 March, more information

April 2016

World Haemophilia Day

17 April, more information

May 2016

World Congenital Disorders of Glcosylation (CDG) Awareness Day

16 May, more information

Annual global hae day :-)

16 May, more information 

European Week Against Cancer

25-31 May, more information

September 2016

Global Aortic Dissection Awareness Day

19 September, more information

October 2016

International Gaucher Day

1 October, more information

International Trigeminal Neuralgia Awareness Day

7 October, more information

Page created: 08/11/2013
Page last updated: 20/05/2016
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases