Rare Diseases awareness dates

Does your association have an awareness date to communicate? Please contact us.

February 2017

International Angelmans Day

15 February, more information

March 2017

Lymphangiomatosis Awareness Day

6 March, more information 


International Childhood Cancer Awareness Day (ICCD 2017)

7 March, more information

April 2017

World Haemophilia Day

19 April, more information 

June 2017

Heart Rhythm Week

5-11 June, more information

Myeloma Awareness Week

21-28 June, more information

Dravet Syndrome Awareness Day

23 June, more information

World Scleroderma Day

29 June, more information

August 2017

World PVNH disorder Awareness day

7 August, more information

September 2017

World Duchenne Awareness Day

7 September, more information

World Cystic Fibrosis Day

8 September, more information

World Retina Day

9 September, more information

World Lymphoma Awareness Day

15 September, more information

Usher Awareness Day - Own the Equinox

16 September, more information

Global Aortic Dissection Awareness Day

19 September, more information

International CML Awareness Day

22 September, more information

International Ataxia Awareness Day

25 September, more information

October 2017

International Gaucher Day

1 October, more information

International Trigeminal Neuralgia Awareness Day

7 October, more information

World Spina Bifida Day

25 October, more information

EB Awareness Week

25-31 October, more information

November 2017

NET Cancer Day

10 November, more information

AF Aware Week

20-26 November, more information

Cystic Fibrosis Awareness week

21 November, more information

December 2017

Patient Solidarity Day

2 December, more information

International Day of Persons with Disabilities

3 December, more information

September 2016

SMA (Spinal Muscular Atrophy) Awareness Week

Date TBC, more information

IPF World Week

17-25 September 2016, more information

Erdheim-Chester Disease Awareness Week

12-17 September 2016, more information

July 2016

Pseudohypoparathyroidism Awareness Day

5 July 2016, more information

June 2016

World Sickle Cell Week

12-19 June 2016, more information

Chromosome Disorder Awareness Week

12-18 June 2016, more information

Page created: 08/11/2013
Page last updated: 27/03/2017
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases