Disclaimer and conditions of use

copyright permissions | linking to this website

The information about rare diseases and orphan drugs provided by Eurordis is intended for educational purposes only. It should not be used for diagnostic or treatment purposes. For more detailed information on particular diseases or for any specific medical questions or problem you may have, contact your personal physician.

Conditions of use

Use of this website constitutes agreement with the following terms and conditions.

While Eurordis takes every care to ensure that the materials, information and data (together the 'Materials') provided on this site (the 'Website') are accurate and up-to-date, we must emphasise that the Materials are provided 'as is' and without warranty or guarantee of any kind, whether express, implied or statutory, or whether relating to title, the rights of third parties or otherwise.

Eurordis reserves the right, at its absolute discretion, to add, revise or remove any Materials without notice.

The Materials are designed for general information purposes only and Eurordis assumes no responsibility for information contained in the Website and disclaims all liability in respect of such information. Those who choose to access the site (the “Users”) shall assume all risks of use and shall indemnify and hold Eurordis, its directors, officers, employees, and agents harmless from and against any and all damages, liabilities, losses, costs, and expenses, including reasonable attorney's fees, arising out of or related to use of information, services or products offered and/or presented on this Website.

Eurordis makes no warranty that the Materials are free of infection by computer viruses or other contamination, or that data or information is created and structured in files that are technically error-free. The downloading of any of the Materials is at the individual user's own risk and the user will be solely responsible for any damage, loss, or problems, whether suffered by the user or a third party in consequence of the user's actions, which results from a download and/or use of any such Materials, or from any linked external sites.

Eurordis is not responsible for any content of any other website accessible from the Website, nor does it endorse or in any respect warrant any third party products or services by virtue of any information, material or content referred to or included on, or linked from or to the Website.

If the Eurordis Website contains online forums, or other message or communication facilities, Eurordis is not responsible for the content or quality of contributions by internet users, including those users designated as “Forum moderators.” Opinions expressed by Users do not necessarily reflect the opinions of Eurordis. Eurordis maintains that online forums and other message facilities are not replacements for individual counselling, or consultation with a health care professional.

If the Eurordis Website contains online forums, or other message or communication facilities, the User shall not do any of the following:

• Defame, abuse, harass, stalk, threaten or otherwise violate the legal rights of others;
• Publish, post, distribute or disseminate any defamatory, infringing, obscene, indecent or unlawful material;
• Upload or attach files that contain software of other material protected by intellectual property laws unless the User owns or controls the rights thereto or have received all necessary consents;
• Upload or attach files that contain viruses, corrupted files, or any other similar software or programs that may damage the operation of another's computer;
• Upload, e-mail, transmit or otherwise make available unsolicited advertising of any goods or services, or conduct or forward surveys, contests, "spam" or chain letters; etc.
• Promote any commercial product, medicinal product or health service for the purpose of, or resulting in, personal financial gain or act as a representative of a for-profit entity.

The User specifically acknowledges and agrees that the Eurordis is not liable for any conduct of any other User, including, but not limited to, the types of conduct listed above.

The host server for the Website is located within the EU. The applicable law in respect of the Website shall be the laws of France only.

This disclaimer is not intended to limit the liability of Eurordis in contravention of any requirements laid down in applicable national law nor to exclude its liability for matters which may not be excluded under that law.

Copyright notice

The Materials are protected by copyright and all other rights (if any) are reserved.

Incorporation of all or any part of the Materials in any other work or publication, whether paper or electronic media or other form, is expressly prohibited without the prior written consent of Eurordis.

Reproduction of portions of the Materials, whether in paper or electronic media or other form, is authorised for personal, non-commercial use and recopy to individual third parties for their personal information or to rare disease organisations for educational use, save where otherwise stated, provided that:

• the User acknowledges the Website as the source of the Materials,
• such an acknowledgement and suitable reference to Eurordis is made in the copy of the Materials, and
• the User informs third parties that they are subject to and must comply with the conditions of this Website. This permission is, however, revocable at any time by Eurordis.

Acknowledgement of the source must cite Eurordis as copyright holder and the uniform resource locator (URL) of the Website (© Eurordis, www.eurordis.org)

The User may not modify the materials found on the Eurordis Website without the permission of Eurordis (eurordis@eurordis.org).

The User may not copy otherwise, republish, lend, post on servers, transmit or redistribute to (mailing) lists this information for commercial purposes or for compensation of any kind without prior written permission from Eurordis.

Some of the materials in the Eurordis Website may contain references to materials from third parties for which copyright must be honoured.

Where prior permission must be obtained for the reproduction or use of textual and multimedia information (sound, images, software, etc.), such permission shall cancel the above-mentioned general permission and shall clearly indicate any restrictions on use.

Linking to the Eurordis Website

A User who maintains an external Website can include hyperlinks to the Eurordis website or to any of its pages on that external site, without having to ask permission. However, this use must not infringe Eurordis' rights, in particular relating to its logo, acronym and intellectual property rights.

A link should not be used for the promotion of any commercial products or services.

Eurordis retains the right to revoke permission to link to the Website at its absolute discretion.

External links to the Eurordis Website do not constitute an endorsement by Eurordis of the external site.

Regarding medical information

Eurordis cannot respond to questions concerning the medical aspects of a rare disease. Eurordis does not employ qualified medical personnel or information specialists to give medical advice, diagnose illness, or offer referrals.

We strongly recommend that you seek the advice of your health care provider with questions regarding medical care.

If you need help finding a patient group for your disease, email us at eurordis@eurordis.org

© Eurordis, 2010

Author: Eurordis