About the EURORDIS Awards

Yann Le Cam, Chief Executive Officer, EURORDIS, speaks about the EURORDIS Awards recognising excellence in the field of rare diseases.

Addressing the challenges of rare diseases requires the leadership and excellence of many patient advocates, patient groups, civil servants, policy makers, researchers and entrepreneurs who combine dedication and innovation. They are passionate about the rare disease cause.

Partnering of all stakeholders and acting at the European level are the only ways forward to deal with the rarity of patients and experts, the lack of resources and interest. Together we are making a difference.

The purpose of the EURORDIS Awards is to recognise the outstanding commitment and achievements of patients’ organisations, volunteers, companies, scientists, media and policy makers who have contributed to reducing the impact of rare diseases on people’s lives. Many others deserve our recognition.


Awards Criteria

Consult the nomination criteria for each award category



See the list of EURORDIS Awards recipients See live footage from the 2017 EURORDIS Awards Ceremony


Media Coverage

Read all about our past award ceremonies and press releases.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases