EURORDIS Expenses 2008

EURORDIS Revenues 2008

EURORDIS Corporate Revenues 2008

Ackowledgements

Eurordis would like to thank the following organisations and companies for their highly valued support in the current year.

AFM - Téléthon
EURORDIS is grateful to the Association Française contre les Myopathies (AFM Téléthon) for their essential contribution to the annual core activities of EURORDIS, as well as for the Therapeutic Development Director secondment and the office space

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INSERM
EURORDIS is grateful to the Institut National de la Santé et de la Recherche (INSERM) for the Clinical Research Advisor secondment and for the partnership in training for patient groups.

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EUROPEAN COMMISSION
EURORDIS is grateful to the European Commission Directorate General of Health and Consumer Protection for co-funding the following projects:

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  Patients’ Consensus on Preferred Policy Scenarios for Rare Diseases (POLKA)
  The European Project for Rare Diseases National Plans Development (EUROPLAN)
  The European Network of Reference for Rare Paediatric Neurological Diseases (nEUroped)
  The Rare Disease Patient Solidarity Project (RAPSODY)

EURORDIS is grateful to the European Commission Directorate General for Research for funding the following projects:

  Translational Research in Europe - Assessment and Treatment of Neuromuscular Diseases (TREAT- NMD)
  Capacity Building for Patient Organisations in Research Activities Project (CAPOIRA)

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THE E-NEWSLETTER and RARE!TOGETHER PROJECT

EURORDIS is grateful to The Medtronic Foundation for their financial support for the EURORDIS E-Newsletter and the Rare!Together Project

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EURORDIS WEBSITE AND MAILING LISTS

EURORDIS is grateful to the French Pharmaceutical Companies Association (LeeM) for its financial support

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EURORDIS is grateful to the Fonds Léa Rose managed by the Fondation Roi Baudouin for funding the feasibility study of the EURORDIS Web 2.0 Project

 

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NEUROPED PROJECT CO-FUNDING

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POLKA PROJECT CO-FUNDING

 

and In-kind contributions from:

National Commissioning Group,NHS, UK

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Fundació Doctor Robert Universitat Autònoma de Barcelona Casa Convalescència

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RARE DISEASE PATIENT SOLIDARITY PROJECT (RAPSODY) CO-FUNDING

Eurordis is grateful to the Baxter International Foundation and Sigma Tau Pharmaceuticals, Actelion OTL Pharma for their essential contribution to the RAPSODY project.

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EUROBIOBANK CO-FUNDING

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SUMMER SCHOOL FOR PATIENTS ADVOCATES

The DIA (Drug Information Association) Philanthropy Programme

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and In-kind contributions from:

Fundació Doctor Robert Universitat Autònoma de Barcelona Casa Convalescència

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ANNUAL MEMBERSHIP MEETING

EURORDIS is grateful to the organisations listed below for their financial support for the Copenhagen Membership Meeting:

 

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MEMBERS OF THE EURORDIS ROUND TABLE OF COMPANIES
The Eurordis Round Table of Companies was created to establish a long-term educational relationship between Eurordis and those companies having an interest in orphan drugs, treatments, medical devices, food supplements and health services for people living with rare diseases. This relationship is driven by the Principles stated in the Round Table’s Code of conduct and according to Eurordis Policy on Financial Support by Commercial Companies.
Eurordis is grateful for the support of the Members of the Eurordis Round Table of Companies >