EURORDIS Summer School

EURORDIS launched the Summer School in 2008 to empower patients' representatives in the areas of clinical trials and EU regulatory affairs. Training resources (i.e. online learning, video recordings and all slide presentations) are organized in complimentary boxes by subject.


ExPRESS 2017 Expert Patient and Researcher EURORDIS Summer School

A new format was developed for the Summer School in 2015 that combines training for both expert patients and researchers on medicines development.

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EURORDIS Summer School Alumni

To date more than 300 participants from over 40 countries representing more than 75 diseases have received training

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Pre-Summer School Training Module

Overview of the topics that are covered at the Summer School as well as exercises and quizzes to familiarise trainees with some of the key concepts and issues presented

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Summer School Trainers

Each year the Summer School material is taught by experts in the field. Learn more about who they are

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EURORDIS Summer School Glossary of Terms

A glossary of terms relating to ethics, methodology, pharmacology, regulation and statistics.

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e-Learning Glossary

An interactive glossary of terms on medicines research & development

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La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rare, Rare Diseases International est une initiative d'EURORDISRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect est une initiative d'EURORDIS RareConnect Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases