Get Involved
In our quest to improve quality of life for people living with rare diseases, EURORDIS depends on the support of concerned citizens, patients and families like you. Your donations, membership, volunteer work and participation in our actions strengthen us in our mission to build a vibrant rare disease community in Europe and beyond.
Patient empowerment can be fun!
EURORDIS is proposing a new consultation method that will give rare disease patients the opportunity to voice their opinion about issues that affect them.
Join the European Rare Disease Network
Why become a member of Eurordis? By becoming a Member of Eurordis, you will: Join an active Pan-European rare disease community of dedicated people facing similar issues
ERTC: Purpose and Aims
The Eurordis Round Table of Companies was created to establish a long-term educational relationship between Eurordis and those companies having an interest in orphan drugs, trea
Eurordis Charter for Clinical Trials in Rare Diseases
The Charter aims at improving the quality of clinical research in rare diseases and at enhancing a transparent and effective dialogue between sponsors and patient organisations.
Play and Decide on your preferred rare disease policy scenario!
The Play Decide Games have taken off! Be inspired and play!
