Take action

Find out how patient groups can get involved in EURORDIS activities.

 

Become a member

Join a vibrant pan-European community of dedicated people facing similar issues 

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Get involved in Rare Disease Day

Find out more about Rare Disease Day and the many ways in which you can get involved

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Join Rare Diseases International

Are you a national alliance or an international federation? Become part of the global network of rare disease patients today

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Nominate an awardee

Throughout September and October every year you can nominate an individual or organisation that has made an exceptional contribution to the rare disease community

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases