International rare disease events

May 2013

7^th Alstrom Syndrome International Family Conference and Scientific Symposium

9-13 May, Massachusetts, USA, alstrom.org
 

IMI (Innovative Medicines Initiative) Stakeholder Forum 2013

Public-private partnerships for health research and innovation
13 May, Brussels, Belgium, /www.imi.europa.eu/

International Meeting of Porphyria Patients

Saturday, 18th of May 2013 in Lucerne, Switzerland, www.porphyrinsandporphyrias.org/
 

Autoinflammation 2013: 7th International Congress of the International Society of Systemic Auto-Inflammatory Diseases

22- 26 May, Lausanne, Switzerland www.autoinflammation2013.com

EURORDIS Membership Meeting 2013 Dubrovnik

May 30 – June 1st, 2013, Dubrovnik, Croatia http://www.eurordis.org/content/membership-meetings

June 2013

4th International DSD (Disorders of Sex Development) Symposium

7-9 June, Glasgow, Scotland http://www.gla.ac.uk

12th European Symposium on Congenital Anomalies

12-14 June, Zagreb, Croatia  www.eurocat2013.com
 

World Orphan Drug Congress Asia

18 June, Singapore http://www.terrapinn.com

6th International Conference on Children's Bone Health

22-25 June, Rotterdam, Netherlands  http://www.iccbh.org
 

DIA 2013 49th Annual Meeting: Advancing Therapeutic Innovation and Regulatory Science

23-27 June, Boston, USA, www.diahome.org
 

Fifth BHD Symposium-Second HLRCC Symposium in Paris

June 28 - 29, 2013, www.BHD-HLRCC-sympo2013.com

July 2013 

MYASTHENIA 2013 International Conference (supported by the FIGHT-MG network and the French Association against Myopathies)

1-2 July, Paris, Pasteur Institute, France /www.myasthenia2013.com/
 

International Summer School for Clinical practice guidelines on rare diseases (free course)

8-12 July 2013, Istituto Superiore di Sanità, Rome, Italy  www.iss.it
5 places available for patient representatives  Deadline for application: 8 May

8^th International Prader-Willi Syndrome Conference

17-21 July, Cambridge UK ipwso.org

20th International Scientific Meeting of the Velo-Cardio-Facial Syndrome Educational Foundation

18-21 July, Dublin, Ireland  www.22q11ireland.org

September 2013

Orphan Drugs Summit 2013

11-13 September, Copenhagen, Denmark www.orphandrugssummit.com
10 complimentary tickets available for patient organisations

2nd Conference of 'EB-CLINET - Clinical Network of EB Centres and Experts'

17-18 September,  Salzburg, Austria  http://www.eb-clinet.org

October 2013

Mitochondrial Disease: Translating biology into new treatments

2-4 October, Cambridge, UK
 

7th Annual Sickle Cell and Thalassaemia Conference

3-5 October, London, UK /www.guysandstthomasevents.co.uk

Annual  EHC Conference – European Haemophilia Consortium

4-6 October, Bucharest, Romania www.ehc.eu
 

ESH International Conference on Multiple Myeloma

4-6 October, Dublin, Ireland, http://www.esh.org

3rd European Rett Syndrome Conference Maastricht

17-19 October, Maastricht, The Netherlands, www.erscm.eu
 

Orphan Drug and RareDisease Seminar: “Accelerating Access to Therapeutic Innovation” (Jointly organised by Eudipharm, F-CRIN, OrphanDev)

17-18 October, Marseille, France   www.fcrin.org
 

Thalassemia International Federation World Congress

19-23 October 2013, Abu Dhabi www.tif2013.org

November 2013

First International Primary Immunodeficiencies Congress (IPIC)

7-8 November, Estoril, Portugal, http://www.ipic2013.com/
 

4th Annual World Orphan Drug Congress Europe

14-15 November, Geneva, Switzerland,  www.terrapinn.com

March 2014

2^nd International Congress on Research of Rare and Orphan Diseases RE(ACT) Congress 2014 to be held at in

5 – 8 March, Basel, Switzerland, react-congress.org
 

May 2014

7th European Conference on Rare Diseases & Orphan Products

8-10 May, Berlin, Germany