Publications
Information-sharing is a key priority for EURORDIS. By sharing information on rare disease subjects, EURORDIS empowers rare disease patients and raises awareness about research, health and social issues affecting their lives.
Position Papers
View all ...A position paper describes an organisation's recommendations concerning a political issue, legislation or a European directive. In the context of its advocacy work in favour of rare diseases, Eurordis regularly publishes position papers on rare disease and orphan drug topics.
