Participate online - EURORDIS Rare Disease Day 2017 events

The live streams of the EURORDIS Awards & Black Pearl Evening and the EURORDIS Multi-Stakeholder Symposium on Improving Patients' Access to Rare Diseases Therapies have now finished. 

A recording of both events will be made available via 

Please email with any questions!

See documents referred to during the Symposium.


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases