Membership of EURORDIS
EURORDIS works to build a strong pan-European community of patient organisations and people living with rare diseases.
Members’ news and announcements
Find out what's on and where! See which members are in the news!
Become a member
As a member of EURORDIS, you will join an active pan-European rare disease community of dedicated people facing similar issues.
EMM 2012 Brussels
The next EURORDIS Membership Meeting (EMM) takes place May 23 in Brussels in conjunction with ECRD 2012.
National Rare Disease Alliances
National rare disease alliances serve to bring together all the many rare disease organisations in a particular country.
The Council of National Alliances (CNA)
The CNA was established by Eurordis. This structure allows national representatives of rare diseases to work together on common European actions.
European or International Networks - Member Groups
A list of EURORDIS member organisations that are federations or networks on the European or international level.
Council of European Rare Disease Federations
The Council of European Rare Disease Federations provides a platform for exchanging experience and information across feder
EURORDIS Membership Meeting 2011 Amsterdam
Empowering the voice of patient advocates in National Plans for Rare Diseases
