Romanian Prader Willi Association (RPWA), Romania
Tel./fax: +40 260 61 65 85
Dorica Dan is the mother of a daughter who was diagnosed with Prader Willi Syndrome at the age of 18.
Dorica initiated RPWA (Romanian Prader Willi Association) in 2003 and established RONARD (Romanian National Alliance for Rare Diseases) through a project funded by CEE Trust in 2007. She has taken part in the opening of the first Centre for Information about Rare Genetic Diseases in Romania and initiated the National Plan for Rare Diseases in Romania.
Today she is the chair of the Romanian Prader Willi Association, Romania (RPWA); president of the Romanian National Alliance for Rare Diseases(RONARD); and the coordinator of the Centre for Information about Rare Genetic Diseases.
She has been a board member of EURORDIS and IPWSO (International Prader Willi Syndrome Organization) since 2007, and is currently an advisor to EUROPLAN, an EU Commission-funded initiative to establish national plans for Rare Diseases throughout the EU Member States.