Yann Le Cam
Yann Le Cam is a patient advocate who has dedicated 25 years of professional and personal commitment to health and medical research non-governmental organisations in France, Europe and the United States in the fields of cancer, HIV/AIDS and rare diseases.
He has three daughters, the eldest of whom is living with cystic fibrosis. Yann is one of the founders of EURORDIS in 1997 and the organisation’s Chief Executive Officer since 2001.
He has participated in the revision and adoption of European regulations that impact the lives of rare disease patients, including the EU Regulation on orphan medicinal products.
He was one of the first patient representatives appointed to the Committee for Orphan Medicinal Products (COMP) at the European Medicines Agency (EMA), where he served for 9 years and was its vice-chair for 6 years. He served on the Management Board and Executive Committee of the French HTA agency for 5 years, on the DIA Advisory Committee Europe for 3 years.
He was the Vice Chairman of the EU Committee of Experts on Rare Diseases (EUCERD) from 2011 to July 2013, and he is nominated on the current Commission Expert Group on Rare Diseases.
Yann Le Cam is also a member of and immediate past Chair of the Therapies Scientific Committee of IRDIRC (the International Rare Diseases Research Consortium).
In June 2016, Yann Le Cam was elected to the Management Board of the European Medicines Agency.