Services to Patients
EURORDIS promotes the implementation of services adapted to the situation and special needs of people living with rare diseases.
The European Network of Rare Disease Help Lines
The European Network of Rare Disease Help Lines was created in September 2006 by a core group of rare disease help lines led by Climb from
European network of respite care services for rare diseases
'Respite care is of great importance, both for the person living with a rare disease and for the whole family and the carers around that person,' says Katrine Fyhri.
Eurordis' training programme for patient groups
Patient representatives are experts on their disease and Eurordis has always advocated for their participation in decision making processes. To do this, however, they need to ac
Our rare disease online communities - mailing lists
Eurordis offers a service for people affected by rare diseases in Europe to exchange information and break out of isolation.
Eurordis Summer School for Patient Advocates: Training in clinical trials & drug development
The 4-day programme covers aspects of clinical trials and drug development, as well as steps
The DIA 2010 EuroMeeting Fellowship Programme
The Drug Information Association (DIA) organises the EuroMeeting each year bringing together all interested parties involved in dru
The European Network of Rare Disease Help Lines
EURORDIS is inviting all Rare Disease help lines in Europe to apply to join the European Network of Rare Disease Help Lines.
