Services to Patients
EURORDIS promotes the implementation of services adapted to the situation and special needs of people living with rare diseases.
Eurordis' training programme for patient groups
Patient representatives are experts on their disease and Eurordis has always advocated for their participation in decision making processes. To do this, however, they need to ac
Our rare disease online communities - mailing lists
Eurordis offers a service for people affected by rare diseases in Europe to exchange information and break out of isolation.
Eurordis Summer School for Patient Advocates
The 2010 session extends the training of previous sessions with a focus on Regulatory Affairs and Health Technology Assessment
The DIA 2010 EuroMeeting Fellowship Programme
The DIA Patient Fellowship programme celebrated its 5th anniversary at the 22nd Annual DIA EuroMeeting.
Therapeutic Recreation Programmes for Rare Diseases
EURORDIS has been promoted and networked Rare Disease Therapeutic Recreation Programmes (TRPs) since 2007. The Rapsodyonline site lists existing services around Europe.
Respite Care Services for Rare Diseases
EURORDIS has been promoting and networking Rare Disease Respite Services since 2007. The Rapsodyonline site lists and maps existing services around Europe.
Help Line Services for Rare Diseases
EURORDIS promotes, networks, trains and advocates on behalf of Rare Disease Help Line Services. The Rapsodyonline site lists and maps existing services around Europe.
EURORDIS Summer School for Patient Advocates 2009
Empowering patients through a better understanding of the drug development process in Europe
