Who We Are

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.

 

In brief

The European Organisation for Rare Diseases (EURORDIS) is the voice of 30 million people affected by rare diseases throughout Europe.

read more...
 

Mission and Achievements

EURORDIS Mission: To build a strong pan-European community of patient organisations and people living with rare diseases.

read more...
 

Representation

EURORDIS is present in the following external institutions and organisations   EMA: European Medicines Agency...

read more...
 

Activity reports, strategic approach and by-laws

The Annual Activity Report produced by EURORDIS lists and develops in detail the priority objectives and achievements of EURORDIS for the previous year.

read more...
 

Staff

EURORDIS is made up of 29 people based in our Paris and Brussels offices.

read more...
 

Board of Directors

EURORDIS' Board of Directors is composed of 12 rare disease patient organisation representatives from countries around Europe. Our members elect the Board.

read more...
 

Contact us

EURORDIS has offices in Paris, France and Brussels, Belgium.

read more...