Who We Are

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.

 

In brief

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to impro

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Our mission

Eurordis' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - direc

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Achievements

Some of our achievements over the past decade: - Extensive European network of more than 434 members in more than 43 countries, and 11 national rare disease alliances

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Employment opportunities at Eurordis

EURORDIS is seeking a Communication & Fundraising Director and an Administrative and Accounting Manager

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Financial Information and Funding

These accounts have been produced by chartered accountants and reviewed by our Statutory Auditor Deloitte & Associés.

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Activity reports, strategic approach & by-laws

The Annual Activity Report produced by Eurordis lists and develops in detail Eurordis' priority objectives and achievements for the previous year.

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Staff

EURORDIS' staff is made up of 24 people based in our Paris and Brussels offices.

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Board of Directors

EURORDIS' Board of Directors is composed of 12 rare disease patient organisation representatives from countries around Europe. Our members elect the Board.

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Contact us

EURORDIS’ headquarters are located in the 14th district of Paris, France with additional offices in Brussels, Belgium.

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EURORDIS receives NORD 2010 Leadership Award

NORD bestowed the 2010 Meyers Leadership Award on EURORDIS for establishing World Rare Disease Day.

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