Who We Are
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
In brief
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases. We are dedicated to improving the quality o
Our mission
The mission of EURORDIS is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and -
Achievements
EURORDIS began with a vision of helping those affected by rare disease. Today we continue to empower and advocate in the field of rare diseases. Some of our achievements
Financial Information and Funding
These accounts have been produced by chartered accountants and reviewed by our Statutory Auditor Deloitte & Associés.
Activity reports, strategic approach and by-laws
The Annual Activity Report produced by EURORDIS lists and develops in detail the priority objectives and achievements of EURORDIS for the previous year.
Board of Directors
EURORDIS' Board of Directors is composed of 12 rare disease patient organisation representatives from countries around Europe. Our members elect the Board.
EURORDIS and the Rare Diseases Platform
The French Minister of Health, Roselyne Bachelot-Narquin, inaugurated the new offices of the Plateforme Maladies Rares on 21 October 2010.
