In this new series, our Communications Manager, Rhiannon Walls, sits down for 10 minutes with rare disease experts to break down the complex issues concerning the rare disease community.
Live-streamed to LinkedIn each month, every episode will be dedicated to a different theme within the rare disease field. These discussions will delve into the most relevant topics of each policy area, clarifying their implications for you and your community, and offering suggestions on how you can get involved!
Join us live next month to be part of the conversation!
Join us next month for more on
Latest episode: Victoria Oruwari
In this month’s episode of 10 Minutes With, host Rhiannon Walls speaks with Victoria Oruwari, a soprano who performed at the EURORDIS Black Pearl Awards in 2025. Victoria shares her inspiring story of defying societal expectations after losing her sight in childhood. Through music, she discovered empowerment and went on to build a thriving international singing career. She also reflects on the transformative power of the arts, underscores the value of representation, and provides thoughtful recommendations for making artistic spaces and professional opportunities more inclusive and accessible.