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- What is an orphan drug?
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- Patient advocates involvement
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- List of the latest marketing authorisations and orphan medicinal products designations
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The EURORDIS Access Campaign
The economic and financial crisis we currently live is considered as one of the most serious that the world has known since the Second World War. In response, several reforms have been implemented and the health care system has not been spared. These cost-containment measures have an impact on the health of citizens and on people living with a rare disease.
EURORDIS has launched series of initiatives to help solve some of the issues, and is part of other actions at the European or international level.
The purpose of EURORDIS Access Campaign, very much inspired by the Médecins Sans Frontières Access Campaign launched in 1999, is to push for improved access to, and the development of, life-saving and life prolonging medicines, diagnostic tests and medical devices for people living with a rare disease.
EURORDIS' work on access to medicines and care
Information on EURORDIS' ongoing activities focused on access to medicines and care.
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Country results of the EURORDIS Access Campaign patient survey
See the results of the Access Campaign Austria Belgium Czech Republic Finland ...
Participate in the EURORDIS Access Campaign
Learn how to get involved in the Access Campaign to help push for improvements in access to medicines and care for people living with a rare disease.
EURORDIS Access Campaign resources
A collection of resources and a glossary of terms to aid in understanding the issues around access to medicines and care for rare diseases.
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative