Anna Spinou was elected to the EURORDIS Board of Directors in 2023.
She is President of the Hellenic Cystic Fibrosis Association (HCFA), ePAG member in ERN-LUNG and member of the CF Patient Registry Working Group of Greek Ministry of Health.
Anna is a 44-year-old proud Cystic Fibrosis (CF) survivor, diagnosed at 6 months old and living in Athens, Greece. She holds a degree in Business Administration from the Athens University of Economics & Business. She has worked for 16 years as an administrative officer at Athens University Hospital “Attikon” and recently retired under national provisions for people with CF.
She has devoted over 15 years to patient advocacy. Since 2018, she has served as President of HCFA, one of the oldest patient organizations in Greece, founded in 1983. Under her leadership, HCFA has significantly improved access to care, innovative CF treatments, lung transplants, specialised CF units, psychosocial support programmes and public awareness campaigns, earning multiple awards and national recognition for its impact on patients’ lives.
From 2021 to 2023, Anna served as President and Board Member of Rare Diseases Greece, actively contributing to national advocacy efforts, awareness campaigns and patient-centred initiatives in the field of rare diseases.
Despite years of living with critical lung disease and 24-hour oxygen dependence, Anna remains a passionate patient advocate, fighting for “Unlimited Breath” for all.
She is a EUPATI fellow and actively participates in both national and European initiatives.
Email: spinou.anna@gmail.com