European Public Affairs Committee (EPAC)
The EURORDIS European Public Affairs Committee (EPAC) was created on 27 March 2004 to provide support to the advocacy activities of EURORDIS. It is a permanent internal Committee whose members have an official mandate to represent our organisation.
The EPAC has three main purposes:
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To share information on latest European policies affecting rare diseases, from research to health care and services
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To discuss views and seek support from other EURORDIS colleagues
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To determine the position of EURORDIS on specific issues
The EPAC is co-chaired by the President of EURORDIS and the Chief Executive Officer. The EPAC members communicate via emails on a regular basis in order to react promptly to advocacy issues affecting rare disease patients. They adopt positions by consensus. The positions of the EPAC are submitted to the Board who adopt all official positions and documents.
Composition of the EPAC:
Page created: 08/05/2014
Page last updated: 23/05/2017