Upcoming EURORDIS events

December 2018

EURORDIS Council of National Alliances (CNA) meeting

10 - 11 December, Paris.
For members of the CNA only. For more information please email  

EURORDIS Council of European Rare Disease Federations (CEF) meeting

11 - 12 December, Paris.
For members of the CEF only. For more information please email

February 2019

EURORDIS Black Pearl Awards 

12 February, Brussels
More information

3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies

13 - 14 February, Brussels
More information

Rare Diseases International 5th Annual Meeting

20 February, New York
More information

Rare Disease Day Policy Event at the United Nations

Second High-Level Event of the NGO Committee for Rare Diseases

21 February, New York
More information

March 2019

EURORDIS Winter School 

11 - 14 March, Paris
More information

May 2019

EURORDIS Membership Meeting 2019

16 - 18 May, Bucharest, Romania
More information

June 2019

EURORDIS Summer School

10 - 14 June, Barcelona
More information



Page created: 10/04/2015
Page last updated: 07/12/2018
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases