In light of the COVID-19 pandemic, all EURORDIS events will be held online until autumn 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

October 2021

EURORDIS webinar on the Rare2030 survey findings

18 October 2021, online

More information

32nd EURORDIS Round Table of Companies Workshop
"The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines"

20 - 21 October 2021, online

Closed event for ERTC members. For more information, please contact Celine Schwob.

November 2021

CNA/CEF meeting

8 - 10 November 2021, online

Closed event for CNA and CEF members.

February 2022

Black Pearl Awards 2022

8 February 2022

More information

June 2022

11th European Conference on Rare Diseases and Orphan Products

27 June to 1 July 2022


The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Please contact for more information.



May 2023

EMM 2023

17 - 18 June 2023, Stockholm, Sweden

Page created: 10/04/2015
Page last updated: 05/10/2021
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases