Update regarding EURORDIS events / COVID-19

EURORDIS-Rare Diseases Europe is closely monitoring the international situation around COVID-19.

In the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming European Conference on Rare Diseases & Orphan Products (ECRD) will now take place online from 14-15 May

The health and safety of all stakeholders participating in ECRD, including people living with a rare disease and their carers, is our primary concern.

More information about how to join/ register to participate in ECRD online.


We continue to closely monitor this fast-evolving situation, referring to the following official information sources:

We take this opportunity to provide this link to the WHO's advice to the public of basic measures against the new coronavirus.

We thank you for your understanding and solidarity.

March 2020

Council of National Alliances - Paris, France

19 March, Virtual meeting due to COVID-19
Invitation only, please contact

May 2020

10th European Conference on Rare Diseases & Orphan Products

14 - 15 May, now held online, more information

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June, Nice, France, please e mail for more information.



Page created: 10/04/2015
Page last updated: 25/03/2020
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases