EURORDIS Events

 

In light of the COVID-19 pandemic, all EURORDIS events will be held online until May 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

November 2020

Council of National Alliances & Council of European Federations meeting

25 - 27 November 2020

Online. This is a closed meeting.

For more information, please email anja.helm@eurordis.org

February 2021

Black Pearl Awards 2021

24 February 2021

Online. Registration coming soon!

For more information please see the Black Pearl Awards website or email martina.bergna@eurordis.org.

Rare Disease Week

22 - 25 February 2021

Online. Registration coming soon!

For more information please see here, or email kostas.aligiannis@eurordis.org.

Rare 2030 plenary conference

23 February 2021

Online. Registration coming soon!

For more information, please see the Rare2030 website or contact anna.kole@eurordis.org.  

Rare Disease Day

28 February 2021

For more information please see the Rare Disease Day website or contact erik.ruiz@eurordis.org.

March 2021

EURORDIS Round Table of Companies

Date to be confirmed.

Online. This is a closed event for members of ERTC.

For more information, please contact celine.schwob@eurordis.org.

May 2021

EURORDIS Membership Meeting

12 – 14 May 2021

Online. This is a closed event for EURORDIS members.

June 2021

EURORDIS General Assembly

17 June 2021

Online. This is a closed event for EURORDIS members.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June

Nice, France

Please e mail martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 19/10/2020
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases