Upcoming EURORDIS events

February 2019

Rare Diseases International 5th Annual Meeting*

20 February, New York more information

Rare Disease Day 2019 Events

EURORDIS Black Pearl Awards* 

12 February, Brussels, more information, livestream

3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies*

13 - 14 February, Brussels more information, livestream

Global Commission to End the Diagnostic Odyssey for Children Living with a Rare Disease, launch event of new road map

20 February, Microsoft Offices Headquarters, Times Square, New York City, more information

Rare Disease Day Policy Event at the United Nations*

Second High-Level Event of the NGO Committee for Rare Diseases

21 February, New York, more information

* These events will be live streamed. Details of how to watch the live stream will be posted on this page 

March 2019

EURORDIS Winter School 

11 - 14 March, Paris more information

May 2019

EURORDIS Membership Meeting 2019

16 - 18 May, Bucharest, Romania more information

ePAG face-to-face meeting 2019

16 May, Bucharest, Romania (held as a satellite meeting to the EURORDIS Membership Meeting 2019).
For ePAG (European Patient Advocacy Group) representatives only. Please email for more information.

June 2019

EURORDIS Summer School

10 - 14 June, Barcelona more information



Page created: 10/04/2015
Page last updated: 18/01/2019
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases