EURORDIS Events

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.


May 2022

EURORDIS General Assembly

18 May 2022, Online
For more information, contact anja.helm@eurordis.org


June 2022

11th European Conference on Rare Diseases and Orphan Products

27 June to 1 July 2022

ECDR_2022.jpgOnline

The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Please contact martina.bergna@eurordis.org for more information.


May 2023

EURORDIS Membership Meeting 2023

25 - 27 May

EMMStockholm, Sweden

Every other year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease.

Please contact anja.helm@eurordis.org for more information.

Page created: 10/04/2015
Page last updated: 08/04/2022
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases