Upcoming EURORDIS events

February 2020

EURORDIS Black Pearl Awards

18 February, Brussels, Belgium, more information

Reframe Rare - a EURORDIS Policy Event to mark the occasion of Rare Disease Day 2020

18 February, European Parliament, Brussels, Belgium, more information
Attendance on invitation only due to limited space. For more information please contact

29th EURORDIS Round Table of Companies Workshop

19 February, Brussels, Belgium, more information

May 2020

10th European Conference on Rare Diseases and Orphan Products

15 - 16 May, Stockholm, Sweden, more information

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June, Nice, France, please e mail for more information.



Page created: 10/04/2015
Page last updated: 14/02/2020
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases