EURORDIS Social Media

EURORDIS Social Media is a great way to stay connected and informed … and to add your voice to ongoing rare disease discussions.

‘Like’ and ‘Follow’ the EURORDIS Facebook page. View the EURORDIS Facebook timeline, get the latest news and information, and participate in the ongoing conversation on current rare disease issues and events.

Follow the latest EURORDIS news on Twitter (@eurordis). Re-tweet EURORDIS posts. Use the #raredisease hashtag when you tweet.

Watch the latest EURORDIS videos on a variety of rare disease topics. Share your favorites.
Follow EURORDIS in photos!



Page created: 12/06/2014
Page last updated: 23/05/2018
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases