- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
EURORDIS Social Media
EURORDIS Social Media is a great way to stay connected and informed … and to add your voice to ongoing rare disease discussions.
facebook.com/eurordis
‘Like’ and ‘Follow’ the EURORDIS Facebook page. View the EURORDIS Facebook timeline, get the latest news and information, and participate in the ongoing conversation on current rare disease issues and events.
twitter.com/eurordis
Follow the latest EURORDIS news on Twitter (@eurordis). Re-tweet EURORDIS posts. Use the #raredisease hashtag when you tweet.
youtube.com/user/eurordis
Watch the latest EURORDIS videos on a variety of rare disease topics. Share your favorites.
instagram.com/eurordis
Follow EURORDIS in photos!
Find out the latest news from the rare disease community! We comply with the HONcode standard for health trustworthy information
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This website received funding under an operating grant from the European Union’s Health Programme (2014-2020)
The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative