EURORDIS webinars

EURORDIS webinars take place to update member organisations or the wider rare disease community on a new activity, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients, such as genome editing. They are designed to be interactive so that participants can ask questions via a chatbox or their microphone.

Upcoming webinars

Rare Disease Week: Advocacy skills

8 December 2020

Closed Event - For more information please contact Kostas Aligiannis,

Rare Disease Day 2021: How to effectively approach media to boost your Rare Disease Day campaign

9 December 2020 at 16:00 CET, registration

Universal Health Coverage Day 2020

In collaboration with Rare Diseases International.

11 December 2020 at 15:00 CET

For more information please contact Clara Hervas,

How to organise action at national level to integrate ERNs

15 December 2020 at 16:00 CET

Closed Event - For more information please contact Anja Helm,

Rare Disease Week: Logistsics ahead of RDW

12 February 2020

Closed Event - For more information please contact Kostas Aligiannis,


External webinars with EURORDIS speakers

EAMDA online International conference on neuromuscular disorders

EURORDIS Speaker: Erwan Berjonneau

9&10 December 2020 - registration

EMA Public stakeholder meeting on the development and authorisation of safe & effective COVID-19 vaccines in the EU

EURORDIS Speaker: Francois Houÿez

11 December 2020 - registration


Past webinars

Previous webinars are made available as a video in the section below. 



Page created: 20/01/2016
Page last updated: 30/11/2020
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases