EURORDIS webinars

EURORDIS webinars take place to update member organisations or the wider rare disease community on a new activity, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients, such as genome editing. They are designed to be interactive so that participants can ask questions via a chatbox or their microphone.

Upcoming webinars

EURORDIS Digital School webinar: Building Engaged Online Communities

29 July from 16.00 - 18.00 (CEST)

>>> Register for the webinar

EURORDIS Digital School webinar: Working with celebrities - successful examples from the rare disease community

29 September from 14.00 - 16.00 (CEST)

>>> Register for the webinar

 

External webinars with EURORDIS speakers

Members of the EURORDIS team regularly participate in webinars organised by other bodies.

EPF Webinar: Health Data Sharing (speaker: Virginie Bros-Facer)

28 July at 2:00pm CEST

>>> Register for the webinar

 

Past webinars

Previous webinars are made available as a video in the section below. 

 

 

Page created: 20/01/2016
Page last updated: 20/07/2020
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases