EURORDIS webinars

EURORDIS webinars take place to update member organisations or the wider rare disease community on a new activity, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients, such as genome editing. They are designed to be interactive so that participants can ask questions via a chatbox or their microphone.

Upcoming webinars

How to use digital strategies to boost your disease awareness day

On 31 October at 13.00 CET. To register to join the webinar email: denis.costello@eurordis.org.

Patient representative Jan Geissler will present the experience of the recent chronic myeloid leukaemia (CML) awareness day and lead a discussion with webinar participants on how to use digital tools to maximise disease awareness during a disease awreness day campaign.

EURORDIS 'how to' webinar series 

The EURORDIS 'how to' webinar series for patient organisations provides interactive training on practical skills such as how to cultivate volunteers, social media and governance. Webinar speakers include fellow patient organisation leaders, topic experts and EURORDIS team members.

Each webinar includes an interactive Q&A, during which participants can ask speakers their own questions. The knowledge shared through the webinars will be useful to participants wanting to grow or improve the structure or communications of their own patient organisation.

The webinars are designed for participants from patient organisations or patients looking to set up patient organisations only.

The next webinar in this series is:

 

Past webinars

This page will be updated as and when there are upcoming public webinars. Previous webinars are made available as a video in the section below. 

 

 

Page created: 20/01/2016
Page last updated: 14/12/2018
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases