EURORDIS webinars

EURORDIS webinars take place to update member organisations or the wider rare disease community on a new activity, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients, such as genome editing. They are designed to be interactive so that participants can ask questions via a chatbox or their microphone.

Upcoming webinars


#30millionreasons webinar

31 May 2022, 14:00 - 15:00

Join us on 31 May 2022 to hear from EURORDIS-Rare Diseases Europe and our members about how you, alongside 2000 people, have helped us in our campaign #30millionreasons for European action on rare diseases, how we have used these reasons and what we are doing next in preparation of the European Conference on Rare Diseases at the end of June!

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External webinars with EURORDIS speakers

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Page created: 20/01/2016
Page last updated: 08/04/2022
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases