Member news and announcements

EURORDIS member groups are welcome to send news and announcements to be published on this page.

Does your association have an event to communicate? Send us your news.

October 2019


10 October, Issy les Moulineaux (92), France, more information

AFMF  - Journée des familles

19 October, Avignon, France, more information

INSIEME è MEGLIO  -  Associazione Italiana Sindrome di Polan

19 October, Modena, Italy, more information

Seltene Skeletterkrankungen kennen lernen

26 October, Kinderklinik Dritter Orden München, more information

November 2019

Global CMTC-OVM Conference

2 November, Netherlands, more information

International Primary Immunodeficiencies Congress (IPIC) 2019 

6-8 November, Madrid, Spain, more information

Congress: Different faces of Dravet syndrome

7-9 November, Zagreb, Croatia, more information

10. Österreichischen Kongress für seltene Erkrankungen und Pro Rare Generalversammlung

8-9 November, Salzburg, Austria, more information

Quality of Life 4 OI

22-25 November, Amsterdam, Netherlands, more information

December 2019

Marche des maladies rares

7 December, Paris, France, more information

February 2020

Journée de formation- le syndrome d'Angelman

7 February 2020, Strasbourg, France, more information

Rare Disease Film Festival

10 February, UK, more information

April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information


This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations


Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations

Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations



Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

Anja Helm
Senior Manager of Relations with Patient Organisations


Esta página está reservada a notícia

s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS


Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti


Page created: 03/12/2009
Page last updated: 08/10/2019
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases