Members’ news and announcements

See which members are in the news!

EURORDIS member groups are welcome to send news and announcements to be published on this page.

Does your association have an event to communicate? Send us your news.


September 2017

Findacure Working with Industry Workshop

8 September, london, tickets here

Walk´n Roll 2017

9 September, Vanløse, Denmark, more information

Presentación de la Novela Once rosas rojas y una amarilla

25 de Septiembre, Sevilla, España, www.ataxiasandalucia.org

International Ataxia Research Conference

27-30 September 2017, Pisa, Italy, iarc2017@eurotraining.it


October 2017


ASUK Conference Health, Happiness and Well-being!

6-7 October, Birmingham, UK, www.alstrom.org.uk

XVIIIème Journée d'information et d’Echanges sur le syndrome HNPCC-Lynch

7 octobre 2017, Lyon, France, www.hnpcc-lynch.com      

22q11 EUROPE 2nd ALLIANCE MEETING

7-8 October 2017, Dublin, Ireland, more information

Childhood Cancer International Survivors Network Annual Conference

12-15 October 2017, Washington D.C, USA, register here

Représentation de la Comédie de Neuilly "Stationnement alterné" de Ray Cooney au bénéfice de l'Association française des hémophiles

14 octobre 2017,Neuilly-sur-Seine, France, réservez en lign

Genetic Alliance 3rd Annual Rare Disease Patient Network Meeting

18 October 2017, Wales, UK, more information                                                                                                                                                                                                                     

8. Österreichischer Kongress für Seltene Erkrankungen 2017 

19-21 Oktober 2017, Wien, Österreichischer, www.forum-sk.at

20. PH-Patiententreffen

20-22 Oktober 2017, Frankfurt/Main, Deutschland, www.phev.de

XIX Jornadas de Investigación de FARPE-FUNDALUCE

25 October, Barcelona, Spain, www.retinosisfarpe.es


November 2017

First European ATTR Amyloidosis Meeting for patients and doctors

2-3 November 2017, Paris, www.attr-meeting.com

CMTC-OVM annual global conference

3-4 November 2017, Leusden, Netherlands, cmtc.nl

30 Jahre Deutsche GBS CIDP Initiative e.V.

4 November 2017, Düsseldorf, Deutschland, gbs-selbsthilfe.org                                                                                                                                                                                                                         

International Primary Immunodeficiencies Congress (IPIC) 2017

8-10 November 2017, Dubai, UAE, www.ipic2017.com

14th International Conference on Thalassaemia & Haemoglobinopathies & 16th TIF International Conference for Patients & Parents

17-19 November 2017, Thessaloniki, Greece, more information

XXXI Congreso Nacional De Enfermedades Neuromusculares

24-25 November, Granada, Spain, more information

The Batten Disease Family Association conference

24-26 November 2017, Stratford Upon Avon, UK, www.bdfa-uk.org.uk


January 2018

European SMA conference, “SMA: research and clinical symposium”

25-27 January 2018, Poland, www.sma-europe.eu


February 2018

3e congrès International sur les syndromes d'Ehler-Danlos

9 février 2018, Paris, France, contact


September 2018

8th NBIA Family Conference

21-22 September, Düsseldorf, Germany, www.hoffnungsbaum.de

 




This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org


 

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 



Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

 


 

Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

 

Esta página está reservada a notícia


s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

 


Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org

 

Page created: 03/12/2009
Page last updated: 10/10/2017
 
 
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