Member news and announcements

EURORDIS member groups are welcome to send news and announcements to be published on this page.


 

SMA Europe is hiring a senior Operations Manager

Deadline: 25/04/2021 - Learn more


Does your association have an event to communicate? Send us your news.

April 2021

RaDiOrg  Edelweiss Awards 2021

April-June 2021, online, nominate

EDS ECHO Event Series: Pain Management – A European Pain Perspective

24-25 April 2021, online, more information

Global 2021 CDH Conference

28 - 30 April 2021, online, more information

International Gaucher Alliance (IGA)  - Bone Disease Webinar

29 April 2021, online, more information

VI Congreso Educativo sobre Enfermedades Rara

30 April 2021, online, more information


May 2021

Presente y futuro del desarrollo de tratamientos para distrofia miotónica tipo 1

12 May 2021, online, more information

XV WORKSHOP PER LA FAMIGLIA

21-23 May 2021, Peschiera del Garda, more information

EDS ECHO Summit Series virtual event focused on the Rarer Types of Ehlers-Danlos Syndromes

29 May 2021, online, more information


June 2021

La Course des Héros 2021

June, online, more information

Congrès de l'Alliance Maladies Rares

4 - 11 June, online, more information

Afadoc: ALLENARE LE RELAZIONI NELLA SINDROME DI TURNER

11-13 June, Peschiera del Garda, more information


July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information


 

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org


 

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 


Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

 


 

Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

 

Esta página está reservada a notícia


s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

 


Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org

 

Page created: 03/12/2009
Page last updated: 19/04/2021
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases