Members’ news and announcements

September 2017

Findacure Working with Industry Workshop

8 September, london, tickets here

Walk´n Roll 2017

9 September, Vanløse, Denmark, more information

Presentación de la Novela Once rosas rojas y una amarilla

25 de Septiembre, Sevilla, España, www.ataxiasandalucia.org

International Ataxia Research Conference

27-30 September 2017, Pisa, Italy, iarc2017@eurotraining.it

October 2017

ASUK Conference Health, Happiness and Well-being!

6-7 October, Birmingham, UK, www.alstrom.org.uk

XVIIIème Journée d'information et d’Echanges sur le syndrome HNPCC-Lynch

7 octobre 2017, Lyon, France, www.hnpcc-lynch.com      

22q11 EUROPE 2nd ALLIANCE MEETING

7-8 October 2017, Dublin, Ireland, more information

Childhood Cancer International Survivors Network Annual Conference

12-15 October 2017, Washington D.C, USA, register here

Représentation de la Comédie de Neuilly "Stationnement alterné" de Ray Cooney au bénéfice de l'Association française des hémophiles

14 octobre 2017,Neuilly-sur-Seine, France, réservez en ligne 

Genetic Alliance 3rd Annual Rare Disease Patient Network Meeting

18 October 2017, Wales, UK, more information                                                                                                                                                                                                                     

8. Österreichischer Kongress für Seltene Erkrankungen 2017 

19-21 Oktober 2017, Wien, Österreichischer, www.forum-sk.at

20. PH-Patiententreffen

20-22 Oktober 2017, Frankfurt/Main, Deutschland, www.phev.de

XIX Jornadas de Investigación de FARPE-FUNDALUCE

25 October, Barcelona, Spain, www.retinosisfarpe.es

November 2017

First European ATTR Amyloidosis Meeting for patients and doctors

2-3 November 2017, Paris, www.attr-meeting.com

CMTC-OVM annual global conference

3-4 November 2017, Leusden, Netherlands, cmtc.nl

30 Jahre Deutsche GBS CIDP Initiative e.V.

4 November 2017, Düsseldorf, Deutschland, gbs-selbsthilfe.org                                                                                                                                                                                                                         

International Primary Immunodeficiencies Congress (IPIC) 2017

8-10 November 2017, Dubai, UAE, www.ipic2017.com

14th International Conference on Thalassaemia & Haemoglobinopathies & 16th TIF International Conference for Patients & Parents

17-19 November 2017, Thessaloniki, Greece, more information

XXXI Congreso Nacional De Enfermedades Neuromusculares

24-25 November, Granada, Spain, more information

The Batten Disease Family Association conference

24-26 November 2017, Stratford Upon Avon, UK, www.bdfa-uk.org.uk

January 2018

European SMA conference, “SMA: research and clinical symposium”

25-27 January 2018, Poland, www.sma-europe.eu

February 2018

3e congrès International sur les syndromes d'Ehler-Danlos

9 février 2018, Paris, France, contact

September 2018

8th NBIA Family Conference

21-22 September, Düsseldorf, Germany, www.hoffnungsbaum.de

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 

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Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org