Member news and announcements

September 2020

AFADOC Webinar Days - Tuo figlio cresce regolarmente?

15-25 September, online, more information

D´Genes organiza un webinar sobre el Síndrome DYRK 1A

22 September, online, registration

Jornada de actualización sobre las enfermedades lisosomales

25-26 September, online, more information

October 2020

EDS ECHO SUMMIT: A Virtual Scientific Conference on EDS, HSD, and Comorbidities

2-3 October, online, more information

DUAG Mitgliederversammlung

3 October, Frankfurt, Germany, more information

Journée Sclérose Tubéreuse de Bourneville

3 October, Hospital Necker, Paris, France, more information

Rare Diseases and Orphan Products Breakthrough Summit

October 8-9, Washington, D.C, USA, more information

XVI WORKSHOP AFaDOC PER LA FAMIGLIA
FAMIGLIE IN CAMPO: LE REGOLE DEL GIOCO

16-18 October, Peschiera del Garda, Italy, more information

20 riunione nazionale dei Pazienti: Fondazione Italiana HHT “Onilde Carini” - Evento On-line

17 October, more information

CMP yearly symposium

17 October, Bruges, Belgium, more information

CMTC-OVM  Members Conference

24 October, more information

34th E.S.PKU Conference 2020

29 October - 1 November, Madrid, Spain, more information

Association Française des Hémophiles- Journée nationale des autres troubles rares de la coagulation

30 October, Lille, France, more information

November 2020

Scientific conference "Sanfilippo Syndrome and Related Diseases"

12-13 November 2020, online, more information

THE INTERNATIONAL SYNGAP1 CONFERENCE AND FDA PFDD SYNGAP1: Patient Voices

19 November 2020, Rockville, Maryland, USA, more information

XI All-Russian Congress of Patients "Development Vector: Patient-Oriented Health Care"

26-29 November, online, more information

The International Netherton Conference

26-27 November, Rotterdam, Netherlands, more information

March 2021

1ère Journée de rencontre des familles, cliniciens, chercheurs autour du syndrome de White-Sutton

Paris, France, more information

April 2021

20th International Vasculitis and ANCA Workshop

18-21 April 2021, Dublin, Ireland, more information

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 

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Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

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Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

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Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org