Members’ news and announcements

See which members are in the news!

EURORDIS member groups are welcome to send news and announcements to be published on this page.

Does your association have an event to communicate? Send us your news.

March 2018

Exhibition EYEOPENER

3-4 March 2018, Antwerp, Belgium, more information

4th European Days of Albinism conference

7-10 March 2018, Oslo, Norway, more information 

Symposium Dravet Syndrome and other Sodium Channel related Encephalopathies

15-17 March 2018, Verona, Italy, more information

April 2018

7th Conferencia Internacional de Displasia Ectodérmica en España

12-14 April, 2018, Murcia, Spain, more information

APIPD Gala de Charité

20 April 2018, Paris, France, more information

AKU Society 2nd International Patient Workshop

23-24 April 2018, Liverpool, United Kingdom, more information

May 2018

Rencontres Nationales de l’Association Française du Syndrome d'Angelman

19-20 May 2018, Lyon, France, more information

AG 2018 des P'tits Courageux

18-21 May 2018, (AG le 20), Malbuisson, France  more information

June 2018

XVI Butterfly Children charity golf tournament

2 June, Aloha Golf Club, Spain, more information

Congrès National de l'Association Française des Hemophiles

2-3 June, Nancy, France, more information

XVI Butterfly Children charity ball

3 June, Aloha Golf Club, Spain, more information

July 2018

Family Conference for myotubular and centronuclear myopathy

14-15 July, London, UK, more information


September 2018

8th NBIA Family Conference

21-22 September, Düsseldorf, Germany,


This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations


Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations

Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations



Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

Anja Helm
Senior Manager of Relations with Patient Organisations


Esta página está reservada a notícia

s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS


Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti


Page created: 03/12/2009
Page last updated: 09/03/2018
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