Member news and announcements

April 2021

RaDiOrg  Edelweiss Awards 2021

April-June 2021, online, nominate

EDS ECHO Event Series: Pain Management – A European Pain Perspective

24-25 April 2021, online, more information

Global 2021 CDH Conference

28 - 30 April 2021, online, more information

International Gaucher Alliance (IGA)  - Bone Disease Webinar

29 April 2021, online, more information

VI Congreso Educativo sobre Enfermedades Rara

30 April 2021, online, more information

May 2021

Presente y futuro del desarrollo de tratamientos para distrofia miotónica tipo 1

12 May 2021, online, more information

XV WORKSHOP PER LA FAMIGLIA

21-23 May 2021, Peschiera del Garda, more information

EDS ECHO Summit Series virtual event focused on the Rarer Types of Ehlers-Danlos Syndromes

29 May 2021, online, more information

June 2021

La Course des Héros 2021

June, online, more information

Congrès de l'Alliance Maladies Rares

4 - 11 June, online, more information

Afadoc: ALLENARE LE RELAZIONI NELLA SINDROME DI TURNER

11-13 June, Peschiera del Garda, more information

July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 

Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Esta página está reservada a notícia

s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org