- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
International rare disease events
February 2022
The International Rare Disease Showcase
1 - 3 February 2022, online, more information
International Childhood Cancer Awareness Day (ICCD) 2022 – EU Policy Webinar
2 February 2022, online, more information
Webinar “Barriers to Diagnosis: Women and X-linked Diseases
8 February 2022, online, more information
M4RD’s annual symposium 'The Unusual Suspects: Rare disease in everyday medicine'
9 February 2022, online, more information
Rare Disease Day at the World Expo
28 February 2022, online/Dubai
Organisers: NGO Committee for Rare Diseases, Ågrenska, Rare Diseases International and EURORDIS
March 2022
TWIN ANEMIA POLYCYTHEMIA SEQUENCE (TAPS) DAY
3 March 2022, worldwide, more information
Third International Summit on Human Genome Editing
7 - 9 March 2022, London, UK, more information
April 2022
IPWSO Summit on Newborn screening for Prader-Willi Syndrome and other chromosome 15 abnormalities
3 April 2022, online, more information
20th International Vasculitis and ANCA Workshop
3 - 6 April 2022, Dublin, Ireland, more information
International Primary Immunodeficiencies Congress
27 - 29 April 2022, Portugal, more information
June 2022
Ketotic Hypoglycemia International Conference
11-12 June 2022, online, more information
HTAi 2022 Annual Meeting
25 - 29 June 2022, Utrecht, Netherlands and online, more information
July 2022
11th International Prader-Willi Syndrome Organisation Conference!
6 – 10 July 2022, University of Limerick, Ireland, more information
September 2022
International Congress on Porphyrins and Porphyrias (ICPP)
4 - 7 September 2022, Sofia, Bulgaria, more information
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative