- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
International rare disease events
June 2021
Speaker Series on different topics around NMDs
June - August 2021, online, more information
ALAPA, Alianza Argentina de Pacientes: PRIMER CONGRESO DE ENFERMEDADES POCO FRECUENTES LATINOAMERICANO
21 - 23 June 2021, online, more information
International Scientific CDG Symposium 2021 (Virtual)
23 -24 June 2021, online, more information
National Organisation for Rare Disorders' (NORD) Interactive Virtual Forum
Join for the 2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards. View agenda.
26 - 27 June 2021, online, more information
ERN Skin Webinar: Ichthyosis and Palmoplantar Keratoderma
29 June 2021, online, more information
Día Mundial de Artrogriposis 2021
30 June 2021, worldwide, more information
July 2021
Speaker Series on different topics around NMDs
June - August 2021, online, more information
Myhre Syndrome Foundation Virtual Conference
10-11 July 2021, online, more information
August 2021
Speaker Series on different topics around NMDs
June - August 2021, online, more information
World Orphan Drug Congress USA 2021 virtual event
25 - 27 April 2021, Maryland, USA, more information
September 2021
Duchenne Awareness Day
7 September 2021, worldwide, more information
October 2021
EPF Congress 2021
26 - 29 October 2021, online, more information
April 2022
20th International Vasculitis and ANCA Workshop
3-6 April, Dublin, Ireland, more information
July 2022
11th International Prader-Willi Syndrome Organisation Conference!
6 – 10 July 2022, University of Limerick, Ireland, more information
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative