International rare disease events

April 2021

Global Congenital Diaphragmatic Hernia Awareness Day

19 April, worldwide, more information

Global 2021 CDH Conference

28 - 30 April 2021, online, more information

May 2021

International Thalassaemia Day 2021

8 May 2021, worldwide, more information

5th World Conference Congenital Disorders of Glycosylation (CDG)

13 - 16 May 2021, online, more information

European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy

26 - 28 May 2021, online, more information

June 2021


21 - 23 June 2021, online, more information

International Scientific CDG Symposium 2021 (Virtual)

23 -24 June 2021, online, more information

April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information

July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 08/04/2021
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases