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- What is an orphan drug?
- Improve the safety of your medicines
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- Role of EURORDIS
- Patient advocates involvement
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- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
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- News & Events
International rare disease events
February 2021
IORD Webinar - India -- Rare Diseases : Prevention
2 February 2021, online, more information
ICCD 2021 Event: Access To Medicines For Paediatric Cancers
3 February 2021, online, more information
International Childhood Cancer Awareness Day policy event hosted by MEP Loucas Fourlas
3 February 2021, online, more information
International Childhood Cancer Awareness Day
3 February 2021, online, more information
Rare Disease Day
28 February, worldwide, more information
March 2021
The ‘’3rd Pan –Middle East Conference on Haemoglobinopathies’’
Dates to be confirmed, United Arab Emirates more information
Huntington's Disease Youth Organisation - 1st Young Adult Congress
12 - 14 March 2021, Glasgow, Scotland, more information
25th Anniversary Congress of the EAHP – “Hospital Pharmacy 5.0 - the future of patient care“
24 - 26 March 2021, Vienna, Austria, more information
April 2022
20th International Vasculitis and ANCA Workshop
3-6 April, Dublin, Ireland, more information
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative