International rare disease events

December 2018

International Neurology Conference

3-5 December, Valencia, Spain, more information

Patient Solidarity Day 2018

7 December, more information


February 2019

Festival Uno Sguardo Raro

9-10 February, Rome, Italy, more information and submissions


March 2019

International Childhood Cancer Awareness Day (ICCD 2019)

6 March, Brussels, Belgium, more information

24th Congress of the EAHP

27-29 March, Barcelona, Spain, more information


April 2019

World Orphan Drug Congress USA 2019

10-12 April, Maryland, USA, more information


May 2019

ICHOM Conference 2019 - Redefining value through patient centered outcomes

2-3 May, Rotterdam, The Netherlands, more information

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information


November 2019

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information


January 2020

1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

 

Page created: 03/12/2009
Page last updated: 10/12/2018
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases