International rare disease events


July 2017

11th European Cytogenetics Conference 2017

1-4 July, Florence, Italy,

3rd World Conference CDG 

15-16 July, Leuven, Belgium,

The 3rd World Congress on Thyroid Cancer (WCTC3)

27-30 July, Boston, USA,

August 2017

Youth Cancer Europe 2017 Meeting

24-27 August, Vilnius, Lithuania,

OlOslo2017- 13th International Conference on Ostegenesis Imperfecta

27-30 August, Oslo, Norway,

September 2017

12th International Conference on Rare Diseases and Orphan Drugs (ICORD)

7-10 September, Beijing, China,

The 9th BIC Conference on hemophilias, rare bleeding disorders, VWD and thrombotic microangiopathies

15-17 September, Rome, Italy

ASTERIX End Symposium

18-19 September, Zaandam, Netherlands,

EB2017 – 5th World Conference of EB Research & 4th Conference of EB-CLINET

24-27 September, Salzburg, Austria, more information

International Ataxia Research Conference 2017

27-30 September, Pisa, Italy,

October 2017

Disorder: The Rare Disease Film Festival

3 October, Boston, USA,

3rd Cambridge Rare Disease Summit

23 October, Robinson College, Cambridge, UK, ticket information

PSP International Research Symposium

26 October, San Francisco, USA  ticket information

5th Annual International Erdheim-Chester Disease Medical Symposium

26 October, New York, USA,

5th Annual International Erdheim-Chester Disease Patient & Family Gathering

27 October, New York, USA, learn more and register here

3rd Annual Congress on Rare Diseases and Orphan Drugs

30 October - 1 November, San Antonio, USA, more information

November 2017

5th Glycoproteinoses International Conference 

1-4 November, Roma,

The Extraordinary Film Festival

7-12 November, Brussels, more information

Third edition of the International Primary Immunodeficiencies Congress - IPIC2017

8-10 November, Dubai,

8th edition of the European Statistical Forum 2017: "Statistical Methods for rare diseases and special populations"

13 November, Barcelona, Spain,

8th World Orphan Drug Congress

13-15 November, Barcelona,

14th International Conference on Thalassaemia & Haemoglobinopathies & 16th TIF International Conference for Patients & Parents

17-19 November 2017, Thessaloniki, Greece,

Debra International Congress

24-26 November, Wellington, New Zealand, 


March 2018

RE(ACT) Congress 2018

7-10 March, Bologna, Italy,

October 2018

The First International Symposium on PSP & CBD

25-26 October, London, UK, ticket information 




Page created: 03/12/2009
Page last updated: 12/10/2017
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases