- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
International rare disease events
August 2018
GNEM Patient Day in the UK
3 August, Manchester, UK, more information
28th IF International Conference on Spina Bifida and Hydrocephalus
10-12 August 2018, New Delhi, India, more information
International Symposium on ‘Diagnosis and management of Dravet Syndrome – From unmet medical needs to best practices’
30 August, Vienna, Austria, more information
September 2018
78th FIP World Congress of Pharmacy and Pharmaceutical Science
2-6 September 2018, Glasgow, Scotland, more information
2018 DEBRA International Congress
7-9 September 2018, Zermatt, Switzerland, more information.
16th International Conference on Batten disease
12-16 September, Lodnon, UK, more information
RareX 2018
13-16 September 2018, Johannesburg, South Africa, more information.
13th International Conference on Rare Diseases and Orphan Drugs (ICORD 2018)
19-20-21 September 2018, Stockholm, Sweden, more information.
Conferencia Internacional Europa Síndrome de Phelan McDermid
21-22- 23 September 2018, Madrid, Spain, more information.
SIOPE – MAC (MEPs Against Cancer) Event
25 September 2018, Brussels, Belgium, more information
2nd XLH Symposium
26 September 2018, Athens, Greece, more information.
International Symposium of the Ehlers-Danlos Syndromes
26- 29 September 2018, Ghent, Belgium, more information.
October 2018
International Gaucher Day 2019
1 October, more information
Congresso Internazionale "Neurofibromatosis Type 1 and 2: from genetics to neurosurgery"
18-19 October, Naples, Italy, more information
The First International Symposium on PSP & CBD
25-26 October, London, UK, ticket information and more information
November 2018
World Orphan Drug Congress 2018
November 6-8 2018, Barcelona, Spain, more information
Keystone Symposia – From Rare to Care: Discovery, Modeling and Translation of Rare Diseases
November 11-14, Vienna, Austria, more information
FRT — Fondation René Touraine Scientific Meeting 2018 - The role of the extracellular matrix in skin physiology and pathology
November 16, Paris, France, more information
December 2018
International Neurology Conference
December 03-05, Valencia, Spain, more information
World Congress on Rare Diseases
December 05-07, 2018 Dubai, UAE, more information.
May 2019
SIOP Europe 2019 Annual Meeting
20-25 May, Prague, more information
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative