International rare disease events

August 2021

Speaker Series on different topics around NMDs

August 2021, online, more information

World Orphan Drug Congress USA 2021

25 - 27 August 2021, Maryland, USA, more information

September 2021

Duchenne Awareness Day

7 September 2021, worldwide, more information

DEBRA International Congress 2021

Organised by DEBRA Russia
Attendance is free of charge
16 - 19 September 2021, online, more information

2021 CHI Virtual RESEARCH Conference

18 September 2021, online, more information

Leaving the darkness: Tackling rare bone disease

22nd September 2021, online, more information

World CML Day 2021 

22 September 2021, worldwide, more information

World Heart Day

29 September 2021, worldwide, more information


30 September 2021, more information

October 2021

Living with SMA: Spotlight on the policy and access environment in Europe

5 October 2021, online, more information

International Usher Info Scientific Symposium  and Patient Symposium

6 - 9 October 2021, online, more information

World MCT8-AHDS Day

8 October 2021, worldwide, more information

NORD Rare Summit (virtual)

18 - 19 October 2021, online, more information

EPF Congress 2021

26 - 29 October 2021, online, more information

April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information

July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 08/09/2021
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases