International rare disease events

June 2021

Speaker Series on different topics around NMDs

June - August 2021, online, more information

ALAPA, Alianza Argentina de Pacientes: PRIMER CONGRESO DE ENFERMEDADES POCO FRECUENTES LATINOAMERICANO

21 - 23 June 2021, online, more information

International Scientific CDG Symposium 2021 (Virtual)

23 -24 June 2021, online, more information

National Organisation for Rare Disorders' (NORD) Interactive Virtual Forum

Join for the 2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards. View agenda

26 - 27 June 2021, online, more information

ERN Skin Webinar: Ichthyosis and Palmoplantar Keratoderma

29 June 2021, online, more information

Día Mundial de Artrogriposis 2021

30 June 2021, worldwide, more information


July 2021

Speaker Series on different topics around NMDs

June - August 2021, online, more information

Myhre Syndrome Foundation Virtual Conference

10-11 July 2021, online, more information


August 2021

Speaker Series on different topics around NMDs

June - August 2021, online, more information

World Orphan Drug Congress USA 2021 virtual event

25 - 27 April 2021, Maryland, USA, more information


September 2021

Duchenne Awareness Day

7 September 2021, worldwide, more information


October 2021

EPF Congress 2021

26 - 29 October 2021, online, more information


April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information


July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 21/06/2021
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases