International rare disease events

February 2020

EHC Round Table of Stakeholders on the topic of Registries and Outcomes

18 February, Brussels, Belgium, more information

International Childhood Cancer Awareness Day (ICCD 2020)

18 February, worldwide, more information

International SCN2A Awareness Day

24 February, worldwide, more information

RDI photo exhibit “Rare Diseases, Leaving no one Behind”

25 February - 6 March, Geneva, Switzerland, more information

XVIII International Conference on Duchenne and Becker Muscular Dystrophy

28 February - 1 March, Rome, Italy, more information

March 2020

6th RE(ACT) Congress - 4th IRDiRC Conference 2020

11-14 March, Berlin, Germany, more information

4th ISNS Middle East-North Africa Regional Meeting 

8-11 March , Limassol, Cyprus

Living with a rare disease in Central and Eastern Europe

23 March, Geneva, Switzerland, more information

April 2020

Human Genome Meeting

05-08 April 2020, Perth Australia, more information 

IAPO 9th Global Patients Congress

16-18 April 2020, Edinburgh, Scotland, more information

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

2020 Congenital Hyperinsulinism International Family Conference

24-26 April 2020, Fort Worth, Texas, USA, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

SIOP Europe 2020 Annual Meeting

4-8 May, Valencia, Spain, more information

EMSP 2020 Annual Conference

7-9 May 2020, Madrid, Spain, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Rare Diseases International 6th Annual Membership Meeting

19 – 20 May 2020, Geneva, Switzerland

Conference on Women and Bleeding Disorders

29-31 May 2020, Basel, Switzerland  more information 

June 2020

2020 Annual SMA Conference

11-14 June, Orlando, Florida, USA, more information

July 2020

3rd EURO-NMD translational Research Summer School, edition 2020

6-10 July, Lieden, Netherlands, more information

September 2020

The ‘’3rd Pan-Asian Regional Conference on Thalassaemia & other Haemoglobinopathies’’ 

Dates to be confirmed, New Delhi, India more information

October 2020

7th international Symposium on NBIA & related disorders

1-3 October, Lausanne, Switzerland, more information

34th E.S.PKU Conference 2020

29 October - 1 November, Madrid, Spain, more information

November 2020

THE INTERNATIONAL SYNGAP1 CONFERENCE AND FDA PFDD SYNGAP1: Patient Voices

19 November 2020, Rockville, Maryland, USA, more information

The International Netherton Conference

26-27 November, Rotterdam, Netherlands, more information

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information

March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information