International rare disease events

October 2019

International Gaucher Day

1 October, more information

8th Annual Symposium on ATP1A3 in Disease 2019

3-4 October, Reykjavik, Iceland, more information

World MCT8-AHDS Day

8 October, worldwide, more information

APARDO Symposium 2019

19-21 October, Taipei, Taiwan, more information coming soon.

November 2019

Innovation Bootcamp in Rare Diseases

4-5 November, Leuven, Belgium, more information

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

Congress: Different faces of Dravet syndrome

7-9 November, Zagreb, Croatia, more information

DISORDER: The Rare Disease Film Festival

9-10 November, San Francisco, USA, more information

The 14th Meeting of the International Conference on Rare Diseases and Orphan Drugs (ICORD)

11-13 November, Rishon Lezion, Israel, more information

EPF Congress

12-14 November, Brussels, Belgium, more information

World Orphan Drug Congress

12-14 November, Barcelona, Spain
A limited number of free passes are available for patient organisations. More info.

WAGR Awareness Day

13 November, worldwide

IAPO's Asia-Pacific Patients Congress

13-14 November, Taipei, Taiwan (Republic of China), more information

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

International Rare Disease Research Consortium (IRDiRC) Meeting

21-22 November, Paris, France

Skin appendages: Developmental and patophysiological aspects

22 November, Paris, France, more information

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information

December 2019

Patient Solidarity Day 2019

7 December, more information

January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

February 2020

Rare Disease Film Festival

10 February, UK, more information

March 2020

6th RE(ACT) Congress - 4th IRDiRC Conference 2020

11-14 March, Berlin, Germany, more information

April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Page created: 03/12/2009
Page last updated: 11/10/2019
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