International rare disease events

February 2022

The International Rare Disease Showcase

1 - 3 February 2022, online, more information

International Childhood Cancer Awareness Day (ICCD) 2022 – EU Policy Webinar

2 February 2022, online, more information

Webinar “Barriers to Diagnosis: Women and X-linked Diseases

8 February 2022, online, more information

M4RD’s annual symposium 'The Unusual Suspects: Rare disease in everyday medicine'

9 February 2022, online, more information

Rare Disease Day at the World Expo

28 February 2022, online/Dubai
Organisers: NGO Committee for Rare Diseases, Ågrenska, Rare Diseases International and EURORDIS

March 2022


3 March 2022, worldwide, more information

Third International Summit on Human Genome Editing

7 - 9 March 2022, London, UK, more information

April 2022

IPWSO Summit on Newborn screening for Prader-Willi Syndrome and other chromosome 15 abnormalities

3 April 2022, online, more information

20th International Vasculitis and ANCA Workshop

3 - 6 April 2022, Dublin, Ireland, more information

International Primary Immunodeficiencies Congress

27 - 29 April 2022, Portugal, more information

June 2022

Ketotic Hypoglycemia International Conference

11-12 June 2022, online, more information

HTAi 2022 Annual Meeting 

25 - 29 June 2022, Utrecht, Netherlands and online, more information

July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

September 2022

International Congress on Porphyrins and Porphyrias (ICPP) 

4 - 7 September 2022, Sofia, Bulgaria, more information

Page created: 03/12/2009
Page last updated: 25/01/2022
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases