International rare disease events

March 2019

International Childhood Cancer Awareness Day (ICCD 2019)

6 March, Brussels, Belgium, more information

International Symposium on Xeroderma Pigmentosum and other Nucleotide Excision Repair Disorders

20 - 22 March, Cambridge, England, more information

24th Congress of the EAHP

27-29 March, Barcelona, Spain, more information

April 2019

World Orphan Drug Congress USA 2019

10-12 April, Maryland, USA, more information

May 2019

ICHOM Conference 2019 - Redefining value through patient centered outcomes

2-3 May, Rotterdam, The Netherlands, more information

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information

Tenth International Thyroid Awareness Week

25-31 May 2019 more information

June 2019

See, Hear, Smile - Topical Meeting on Osteogenesis Imperfecta

14-15 June, Riga, Latvia, more information

July 2019

4th World Conference on Congenital Disorders of Glycosylation (CDG)

26 - 27 July, Lisbon, Portugal, more information.

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information

August 2019

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information


November 2019

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

December 2019

Patient Solidarity Day 2019

7 December, more information

January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information


Page created: 03/12/2009
Page last updated: 18/02/2019
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases