International rare disease events

August 2021

Speaker Series on different topics around NMDs

August 2021, online, more information

World Orphan Drug Congress USA 2021

25 - 27 August 2021, Maryland, USA, more information


September 2021

Duchenne Awareness Day

7 September 2021, worldwide, more information

DEBRA International Congress 2021

Organised by DEBRA Russia
Attendance is free of charge
16 - 19 September 2021, online, more information

2021 CHI Virtual RESEARCH Conference

18 September 2021, online, more information

Leaving the darkness: Tackling rare bone disease

22nd September 2021, online, more information

World CML Day 2021 

22 September 2021, worldwide, more information

World Heart Day

29 September 2021, worldwide, more information

SIOPE-MAC WEBINAR FOR GOLD SEPTEMBER:CHILDHOOD CANCER AWARENESS MONTH

30 September 2021, more information


October 2021

Living with SMA: Spotlight on the policy and access environment in Europe

5 October 2021, online, more information

International Usher Info Scientific Symposium  and Patient Symposium

6 - 9 October 2021, online, more information

World MCT8-AHDS Day

8 October 2021, worldwide, more information

NORD Rare Summit (virtual)

18 - 19 October 2021, online, more information

EPF Congress 2021

26 - 29 October 2021, online, more information


April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information


July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 08/09/2021
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases