International rare disease events

October 2021

5th CMT awareness campaign

1 October 2021, worldwide, more information

Living with SMA: Spotlight on the policy and access environment in Europe

5 October 2021, online, more information

International Usher Info Scientific Symposium  and Patient Symposium

6 - 9 October 2021, online, more information

World MCT8-AHDS Day

8 October 2021, worldwide, more information

Global NCBRS Awareness Day

9 October 2021, worldwide, more information

DIAGNOSED BUT NOT TREATED? PRIORITIZING TIMELY CARE IN EUROPE’S CANCER PLANS

13 October 2021, online, more information

EAMDA International Conference on Neuromuscular disorders

15-16 October 2021, online, more information 

NORD Rare Summit (virtual)

18 - 19 October 2021, online, more information

Journée internationale du syndrome Phelan-mcdermid

22 October 2021, worldwide, more information

EPF Congress 2021

26 - 29 October 2021, online, more information

15th International Brain Tumour Awareness Week

30 October - 6 November 2021, worldwide, more information


November 2021

World Orphan Drug Congress Europe

15 - 18 November 2021, Sitges, Spain, more information

1st International Conference on Rare Diseases and Paediatric Research

18 - 19 November 2021, online, more information


April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information


July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 21/10/2021
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases