International rare disease events

November 2020


19 November 2020, Rockville, Maryland, USA, more information

EMSP 2020 Annual Conference

20-21 November 2020, Madrid, Spain, more information

The International Netherton Conference

26-27 November, Rotterdam, Netherlands, more information

RAREfest20 Virtual: Interactive science, technology & arts festival

28 November, online, more information

Duchenne Patient Academy

30 November – 6 December, online, more information

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information

December 2020

Virtual Congenital Hyperinsulinism International conference

5-6 December, online, more information

European Neurofibromatosis Meeting 2020

10-12 December, Rotterdam, The Netherlands, more information

Duchenne Patient Academy (DPA)

December 2020, Athens, more information

January 2021

IRDiRC Conference and RE(ACT) Congress 2021

13-15 January 2021, online, more information

February 2021

Rare Disease Day

28 February, worldwide, more information

March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

12 - 14 March 2021, Glasgow, Scotland, more information

25th Anniversary Congress of the EAHP – “Hospital Pharmacy 5.0 - the future of patient care“

24 - 26 March 2021, Vienna, Austria, more information

April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information

Page created: 03/12/2009
Page last updated: 15/11/2020
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases