International rare disease events

September 2019

World Autoinflammatory Awareness Month

September, worldwide, more information

2019 CHI Family Conference

6 - 8 September 2019, Philadelphia, PA, USA more information

Aortic Dissection Awareness Day

19 September 2019, worldwide, more information

7th UIA Associations Round Table Asia-Pacific

19-20 September 2019, Pattaya, Thailand, more information

Integrated Care, a Global Approach

19-20 September, Burgos, Spain, more information

China Rare Disease Summit

20-22 September, Shenzen, China, more information

UN High Level Meeting on Universal Health Coverage

23 September, New York, USA, more information


23 September, Cambridgeshire, England, more information

Dravet Syndrome Conference 2019

26 September, Madrid, Spain, more information

October 2019

International Gaucher Day

1 October, more information

8th Annual Symposium on ATP1A3 in Disease 2019

3-4 October, Reykjavik, Iceland, more information

APARDO Symposium 2019

19-21 October, Taipei, Taiwan, more information coming soon.

November 2019

Innovation Bootcamp in Rare Diseases

4-5 November, Leuven, Belgium, more information

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

The 14th Meeting of the International Conference on Rare Diseases and Orphan Drugs (ICORD)

11-13 November, Rishon Lezion, Israel, more information

World Orphan Drug Congress

12-14 November, Barcelona, Spain

A limited number of free passes are available for patient organisations. More info.

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

International Rare Disease Research Consortium (IRDiRC) Meeting

21-22 November, Paris, France

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information

December 2019

Patient Solidarity Day 2019

7 December, more information

January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

May 2020

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Page created: 03/12/2009
Page last updated: 22/08/2019
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