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COVID-19 Information Resource Centre

Please find below EURORDIS statements, sources of official information, and information/activities organised in response to the pandemic which we have received through our network.

If you have any updates from the rare disease community on how your organisations are responding to the COVID-19 crisis please contact: eurordis@eurordis.org.


Other Resources


Information from national and local rare disease patient groups

Below is the information received from national and local rare disease patient groups on the latest COVID-19 developments.

Czech Republic

Denmark

France-Alliance Maladies Rares

Germany

Hong Kong

Ireland

Italy

Japan

Netherlands

Norway

Spain

UK

USA

 

Information from European-level disease networks and federations

 

Information from European Reference Networks

 

Information from international groups