Skip to content
Generic filters
Exact matches only
Search in title
Search in content
Search in excerpt

Annual Reports, Work Programmes, Statutes and By-Laws

Banner with annual reports

As part of our efforts to provide transparency and accountability, we offer access to important documents that detail our activities, goals, and organisational structure. 

Activity Reports and Work Programmes

Our Annual Reports provide an overview of the activities and achievements of EURORDIS-Rare Diseases Europe over the past year. They offer insights into the progress we have made in our advocacy efforts, collaborations, research projects, and patient support activities. We encourage you to read our Annual Reports to learn more about our work and impact.

Our Work Programmes outline the goals and objectives of EURORDIS-Rare Diseases Europe for a given period. They provide a detailed roadmap of our activities, initiatives, and priorities, and they serve as a reference point for our members, partners, and stakeholders. By reviewing our Work Programmes, you can gain a better understanding of our strategic vision and plans.

Statutes and By-laws

Our Statutes and By-laws define the legal framework of EURORDIS-Rare Diseases Europe. They describe our mission, governance structure, membership rules, decision-making processes, and financial procedures. They also clarify the rights and obligations of our members and officers. By familiarising yourself with our Statutes and By-laws, you can understand how our organisation operates and what values we uphold.

Latest Documents

We hope that the documents provided on this webpage will help you understand our work and our commitment to advancing the cause of rare diseases in Europe. If you have any questions or comments, please do not hesitate to contact us.

Contact person

Marine Hurard,
Governance Senior Manager - EU Operating Grant Lead

Marine Hurard