Treasurer of EURORDIS-Rare Diseases Europe
Alain was elected to the EURORDIS Board of Directors in 2020 and currently serves as Treasurer.
Alain worked as a Global Finance Executive in a large consumer goods multinational for 32 years. When his wife was diagnosed with Systemic Lupus Erythematosus in 2004, he decided to repurpose his skills towards the rare disease cause, getting involved with the lupus community as a volunteer, treasurer, and patient advocate.
He holds the position of General Secretary of Lupus Europe and is also on the Board of L’ASBL CLAIR (Contre les Affections Rhumatismales Inflammatoires) and the Patient Expertise Center (Belgium), in addition to supporting several groups on governance, finance, leadership and strategy matters.
Alain is an active ePAG advocate in ERN ReCONNET and EJP-RD WP20 on Clinical trials. He is also an alumnus of both EURORDIS Summer and Winter Schools.