Member news and announcements

February 2020

Car Wash in aid of The National Alliance for Rare Diseases Support – Malta

1 February 2020, Marsa, Malta, more information

Journée de formation- le syndrome d'Angelman

7 February 2020, Strasbourg, France, more information

Encuentro Nacional Xeroderma Pigmentoso 2020

8 February, Barcelona, Spain, more information

I ENCUENTRO AMILO 2020

13 February, Madrid, Spain more information

EHC Round Table of Stakeholders on the topic of Registries and Outcomes

18 February, Brussels, Belgium, more information

International Childhood Cancer Awareness Day (ICCD 2020)

18 February, worldwide, more information

XVIII International Conference on Duchenne and Becker Muscular Dystrophy

28 February - 1 March, Rome, Italy, more information

March 2020

1ère Journée de rencontre des familles, cliniciens, chercheurs autour du syndrome de White-Sutton

27 March 2020, Paris, France, more information

CMP yearly symposium

28 March, Bruges, Belgium, more information

April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

May 2020

Europäische Familienkonferenz für Menschen mit Zentronukeären Myopathien

21-24 May 2020, Bad Nauheim, Germany, more information

EHC Conference on Women and Bleeding Disorders

29-31 May 2020, Basel, Switzerland, more information

June 2020

European Polio Union – 2020 Annual General Meeting

10-12 June, Vitoria, N. Spain, more information

July 2020

12th Annual Usher Syndrome Coalition USH Connections Conference

10-11 July 2020, Austin, Texas, USA, more information

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 

Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Esta página está reservada a notícia

s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org