Member news and announcements

August 2021

Mes Internacional de Concienciación de los Autoinflamatorios

August 2021, online, more information

September 2021

Usher 1B Virtual Workshop

13 September 2021, online, more information

Launch of Myhre Syndrome Foundation International Research Grant Program

13 September 2021, more information

PKD European Patients Day

18 September 2021, online, more information

CMTC-OVM Webinar: Management of your child's health

18 September 2021, online, more information

11. Österreichischer Kongress für Seltene Krankheiten Innsbruck

24 - 25 September 2021, more information

Free Webinar: Long Term Effects of Twin Anemia Polycythemia Sequence

28 September 2021, online, more information

October 2021

CTF Europe - INFER Masterclasses in NF - NF1 Cutaneous Neurofibromas

6 October 2021, online, more information

RAREsummit21

7 October 2021, online, more information  

WAPO eSummit 2021

8-9 October 2021, online, more information

The Twin Run

8-10 October 2021, Netherlands, more information

Fragile X France - Conférences scientifiques dédiées aux familles

9 October 2021, online, more information

Fundación ALPE Acondroplasia - Congreso ALPE en torno a las ADEE

9-11 October 2021, Gijón, España, more information

INFER Masterclasses in NF – NF1 Malignant Peripheral Nerve Sheath Tumors

25 October 2021, online, more information

CMTC-OVM  annual worldwide members' conference

30 October 2021, online, more information

November 2021

CTF Europe  - INFER Masterclasses in NF – NF1 Orthopedic Manifestations

9 November 2021, online, more information

December 2021

Marche des Maladies Rares

4 December 2021, Paris, France, more information

CTF Europe  - INFER Masterclasses in NF – NF1 Associated Glioma in Children - the Optic Pathway and Beyond

10 December 2021, online, more information

June 2022

Batten Disease Family Association Conference 2022

11 – 12 June 2022,  more information

July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 

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Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Esta página está reservada a notícia

s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

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Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org