Member news and announcements

November 2021

ASEM Catalunya - XI GALA PREMIS FEM PINYA

15 November 2021, Barcelona, more information

1st International Conference on Rare Diseases and Paediatric Research

18 - 19 November 2021, online, more information

International conference of cystic fibrosis ‘V4 future CF? 

19 - 20 November 2021, Krakow, Poland, more information 

Pride of Batten Awards

20 November 2021, online, more information

1ère journée des fatigues

21 November 2021, online, more information 

Metabolic Support UK : 'Rare Thinking' Conference

25 - 27 November 2021, online, more information

FEDER - Foros de Enfermedades Raras

26 November, Euskadi and online, more information 

December 2021

Marche des Maladies Rares

4 December 2021, Paris, France, more information

CTF Europe  - INFER Masterclasses in NF – NF1 Associated Glioma in Children - the Optic Pathway and Beyond

10 December 2021, online, more information

June 2022

Batten Disease Family Association Conference 2022

11 – 12 June 2022,  more information

July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 

Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Esta página está reservada a notícia

s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org