Member news and announcements

September 2019

RAREsummit19

23 September, Cambridgeshire, England, more information

La Comédie de Neuilly joue pour ALIS

26 September, more information

Dravet Syndrome Conference 2019

26 September, Madrid, Spain, more information

Nationale Konferenz zu Seltenen Erkrankungen NAKSE in Berlin

26-27 September, Berlin, Germany, more information

Conférence « Repères subjectifs et enjeux éthiques dans les maladies génétiques »

30 September, Espace Création, Sion, Switzerland, more information

October 2019

8th Annual Symposium on ATP1A3 in Disease 2019

3-4 October, Reykjavik, Iceland, more information

Jornada Nacional de Pacientes de FMF y Autoinflamatorios

5 October, Barcelona, Spain, more information

20 ans Association Belge du Syndrome de Marfan

5 October, Brussels, Belgium, more information

Soirée au profit de l’APCH: NINA GUETTA AQUAREL SONGS et BLUE JAZZMIN

10 October, Issy les Moulineaux (92), France, more information

INSIEME è MEGLIO  -  Associazione Italiana Sindrome di Polan

19 October, Modena, Italy, more information

Seltene Skeletterkrankungen kennen lernen

26 October, Kinderklinik Dritter Orden München, more information

November 2019

Global CMTC-OVM Conference

2 November, Netherlands, more information

International Primary Immunodeficiencies Congress (IPIC) 2019 

6-8 November, Madrid, Spain, more information

10. Österreichischen Kongress für seltene Erkrankungen und Pro Rare Generalversammlung

8-9 November, Salzburg, Austria, more information

Quality of Life 4 OI

22-25 November, Amsterdam, Netherlands, more information

April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 

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Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

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Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

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Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org