The EURORDIS Round Table of Companies (ERTC)

The EURORDIS Round Table of Companies (ERTC) fosters an educational relationship and a constructive dialogue between EURORDIS and companies addressing rare diseases.

Since its inception 20 years ago, EURORDIS has gained expertise in dealing with the various public and private institutions involved in the rare disease and orphan drug fields. Through the ERTC programme, EURORDIS shares this expertise by bringing together industry, patient advocates, public officials and other experts to address patient needs. Discussions mainly take place at two ERTC workshops.

 

ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Leer más...
 

Join the ERTC

The EURORDIS Round Table of Companies (ERTC) fosters an educational relationship and a constructive dialogue between EURORDIS and companies addressing rare diseases.

Leer más...
 

ERTC Workshops

The ERTC holds regular workshops, bringing together stakeholders to discuss topics relevant to the development of orphan drugs and other treatments for rare diseases.

Leer más...
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades raras, Rare Diseases International es una iniciativa de EURORDISRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases